Published in Bioethics on June 01, 2001
Balancing autonomy and responsibility: the ethics of generating and disclosing genetic information. J Med Ethics (2003) 1.46
Long-term outcomes of BRCA1/BRCA2 testing: risk reduction and surveillance. Cancer (2011) 1.41
Communicating genetic risk information within families: a review. Fam Cancer (2010) 1.26
Hereditary nonpolyposis colorectal cancer family members' perceptions about the duty to inform and health professionals' role in disseminating genetic information. Genet Test (2005) 1.05
What's at stake? Genetic information from the perspective of people with epilepsy and their family members. Soc Sci Med (2011) 1.00
Factors influencing intrafamilial communication of hereditary breast and ovarian cancer genetic information. Eur J Hum Genet (2009) 0.99
BRCA1/2 genetic testing uptake and psychosocial outcomes in men. Fam Cancer (2011) 0.91
A family genetic risk communication framework: guiding tool development in genetics health services. J Community Genet (2013) 0.90
100 years Lynch syndrome: what have we learned about psychosocial issues? Fam Cancer (2013) 0.89
The impact of social roles on the experience of men in BRCA1/2 families: implications for counseling. J Genet Couns (2008) 0.88
Unpacking the blockers: understanding perceptions and social constraints of health communication in hereditary breast ovarian cancer (HBOC) susceptibility families. J Genet Couns (2011) 0.85
Men in the women's world of hereditary breast and ovarian cancer--a systematic review. Fam Cancer (2009) 0.84
Families' experience of oncogenetic counselling: accounts from a heterogeneous hereditary cancer risk population. Fam Cancer (2012) 0.83
Attitudes of physicians and patients towards disclosure of genetic information to spouse and first-degree relatives: a case study from Turkey. BMC Med Ethics (2014) 0.82
Improving family communication after a new genetic diagnosis: a randomised controlled trial of a genetic counselling intervention. BMC Med Genet (2014) 0.82
Disclosing cancer genetic information within families: perspectives of counselees and their at-risk relatives. Fam Cancer (2010) 0.80
Development and validation of an instrument to measure the impact of genetic testing on self-concept in Lynch syndrome. Clin Genet (2011) 0.80
Is the psychological impact of genetic testing moderated by support and sharing of test results to family and friends? Fam Cancer (2013) 0.78
Support Seeking or Familial Obligation: An Investigation of Motives for Disclosing Genetic Test Results. Health Commun (2015) 0.78
Challenges in managing genetic cancer risk: a long-term qualitative study of unaffected women carrying BRCA1/BRCA2 mutations. Genet Med (2014) 0.76
"I am pregnant and my husband has diabetes. Is there a risk for my child?" A qualitative study of questions asked by email about the role of genetic susceptibility to diabetes. BMC Public Health (2010) 0.75
Social determinants of family health history collection. J Community Genet (2015) 0.75
What women with breast cancer discuss with clinicians about risk for their adolescent daughters. J Psychosoc Oncol (2012) 0.75
Cancer worry among Norwegian male BRCA1/2 mutation carriers. Fam Cancer (2011) 0.75
Genetic testing for Lynch syndrome: family communication and motivation. Fam Cancer (2016) 0.75
Interest of individuals from BRCA families to participate in research studies focused on male BRCA carriers. Fam Cancer (2013) 0.75
The impact of participation in genetic research for families with cleft lip with and without cleft palate: a qualitative study. J Community Genet (2014) 0.75
Exploring the Discussion of Risk of Sudden Cardiac Death. Pediatr Cardiol (2015) 0.75