Published in Patient Educ Couns on July 25, 2006
Transition of care from paediatric to adult rheumatology. Arch Dis Child (2007) 1.21
Adaptation to living with a genetic condition or risk: a mini-review. Clin Genet (2008) 1.05
Psychosocial developmental milestones in men with classic galactosemia. J Inherit Metab Dis (2011) 0.80
Explorative study on the aftercare of pediatric brain tumor survivors: a parents' perspective. Support Care Cancer (2010) 0.79
A cognitive behavioral based group intervention for children with a chronic illness and their parents: a multicentre randomized controlled trial. BMC Pediatr (2011) 0.77
Clinical and Neurobiological Perspectives of Empowering Pediatric Cancer Patients Using Videogames. Games Health J (2015) 0.77
Definitions and measurement of chronic health conditions in childhood: a systematic review. JAMA (2007) 2.86
Young adult patients with a history of pediatric disease: impact on course of life and transition into adulthood. J Adolesc Health (2006) 1.78
Neurocognitive deficits in children with sickle cell disease: a comprehensive profile. Pediatr Blood Cancer (2010) 1.53
Social consequences in adult life of end-stage renal disease in childhood. J Pediatr (2005) 1.50
International comparison of contributions to psychosocial research on survivors of childhood cancer: past and future considerations. J Pediatr Psychol (2004) 1.41
Hidden consequences of success in pediatrics: parental health-related quality of life--results from the Care Project. Pediatrics (2008) 1.31
White matter fractional anisotropy correlates with speed of processing and motor speed in young childhood cancer survivors. Int J Radiat Oncol Biol Phys (2008) 1.30
Pediatric health-related quality of life questionnaires in clinical trials. Curr Opin Allergy Clin Immunol (2006) 1.27
Living with classical galactosemia: health-related quality of life consequences. Pediatrics (2004) 1.26
Emotional functioning of parents of children with cancer: the first five years of continuous remission after the end of treatment. Psychooncology (2008) 1.12
Health related quality of life of Dutch children: psychometric properties of the PedsQL in the Netherlands. BMC Pediatr (2009) 1.05
Innovations in e-health. Qual Life Res (2013) 1.03
A predictive model of Health Related Quality of life of parents of chronically ill children: the importance of care-dependency of their child and their support system. Health Qual Life Outcomes (2009) 1.03
Health-related quality of life in young adults with symptoms of constipation continuing from childhood into adulthood. Health Qual Life Outcomes (2009) 1.02
Monitoring health-related quality of life in paediatric practice: development of an innovative web-based application. BMC Pediatr (2011) 1.00
Neurocognitive deficits in children with sickle cell disease are associated with the severity of anemia. Pediatr Blood Cancer (2010) 1.00
Effect of dexamethasone on quality of life in children with acute lymphoblastic leukaemia: a prospective observational study. Health Qual Life Outcomes (2008) 0.98
Longitudinal assessment of health-related quality of life in preschool children with non-CNS cancer after the end of successful treatment. Pediatr Blood Cancer (2008) 0.97
Neurocognitive consequences of a paediatric brain tumour and its treatment: a meta-analysis. Dev Med Child Neurol (2012) 0.96
Behavioral therapy for childhood constipation: a randomized, controlled trial. Pediatrics (2008) 0.96
Defining chronic diseases and health conditions in childhood (0-18 years of age): national consensus in the Netherlands. Eur J Pediatr (2008) 0.96
Chronic childhood constipation: a review of the literature and the introduction of a protocolized behavioral intervention program. Patient Educ Couns (2007) 0.93
Neonatal screening for congenital hypothyroidism in the Netherlands: cognitive and motor outcome at 10 years of age. J Clin Endocrinol Metab (2006) 0.92
Quality of life in children three and nine months after discharge from a paediatric intensive care unit: a prospective cohort study. Health Qual Life Outcomes (2008) 0.92
Outcome of paediatric intensive care survivors. Eur J Pediatr (2007) 0.91
Health-related quality of life, cognitive functioning and behaviour problems in children with Langerhans cell histiocytosis. Pediatr Blood Cancer (2009) 0.91
Follow-up after paediatric intensive care treatment: parental posttraumatic stress. Acta Paediatr (2008) 0.91
Course and predictors of posttraumatic stress disorder in parents after pediatric intensive care treatment of their child. J Pediatr Psychol (2010) 0.90
Efficacy of psychosocial group intervention for children with chronic illness and their parents. Pediatrics (2013) 0.89
Behavioral and emotional problems in children with sickle cell disease and healthy siblings: Multiple informants, multiple measures. Pediatr Blood Cancer (2009) 0.89
Health related quality of life in Dutch young adults: psychometric properties of the PedsQL generic core scales young adult version. Health Qual Life Outcomes (2014) 0.87
Predicting health-related quality of life of parents of children with inherited metabolic diseases. Acta Paediatr (2009) 0.87
An explorative study on quality of life and psychological and cognitive function in pediatric survivors of septic shock. Pediatr Crit Care Med (2009) 0.87
Posttraumatic stress disorder (PTSD) in children after paediatric intensive care treatment compared to children who survived a major fire disaster. Child Adolesc Psychiatry Ment Health (2008) 0.87
Parenting a child with phenylketonuria or galactosemia: implications for health-related quality of life. J Inherit Metab Dis (2011) 0.87
The course of life of patients with childhood atopic dermatitis. Pediatr Dermatol (2009) 0.86
Coping and family functioning predict longitudinal psychological adaptation of siblings of childhood cancer patients. J Pediatr Psychol (2004) 0.86
Sleep disorders in children after treatment for a CNS tumour. J Sleep Res (2011) 0.86
Psychosocial indicators of health-related quality of life in children with cancer 2 months after end of successful treatment. J Pediatr Hematol Oncol (2007) 0.86
Long-term psychological distress in parents of child survivors of severe meningococcal disease. Pediatr Rehabil (2005) 0.86
A multicentric study of disease-related stress, and perceived vulnerability, in parents of children with congenital cardiac disease. Cardiol Young (2009) 0.85
Effectiveness of a web-based application to monitor health-related quality of life. Pediatrics (2013) 0.85
Health-related quality of life in children and emotional reactions of parents following completion of cancer treatment. Pediatr Blood Cancer (2006) 0.84
Development and validation of the distress thermometer for parents of a chronically ill child. J Pediatr (2013) 0.84
Course of life of survivors of childhood cancer is related to quality of life in young adulthood. J Psychosoc Oncol (2007) 0.84
Health-related quality of life and impact of haemangiomas on children and their parents. J Plast Reconstr Aesthet Surg (2008) 0.84
Evaluation of a psycho-educational group intervention for children treated for cancer: a descriptive pilot study. Psychooncology (2009) 0.82
Psychometric qualities of the Dutch version of the Pediatric Inventory for Parents (PIP): a multi-center study. Psychooncology (2010) 0.82
The impact of delayed development on the quality of life of adults with end-stage renal disease since childhood. Pediatr Nephrol (2006) 0.82
Factors influencing childhood cancer patients to participate in a combined physical and psychosocial intervention program: Quality of Life in Motion. Psychooncology (2014) 0.82
Health related quality of life in parents of six to eight year old children with Down syndrome. Res Dev Disabil (2013) 0.82
Quality of life questionnaires for children with cancer and childhood cancer survivors: a review of the development of available measures. Support Care Cancer (2009) 0.81
Prevalence and associated clinical characteristics of behavior problems in constipated children. Pediatrics (2010) 0.81
Evaluation of quality of life in PKU before and after introducing tetrahydrobiopterin (BH4); a prospective multi-center cohort study. Mol Genet Metab (2013) 0.81
Child and parental adaptation to pediatric stem cell transplantation. Support Care Cancer (2008) 0.81
Psychosocial developmental trajectory of adolescents with inflammatory bowel disease. J Pediatr Gastroenterol Nutr (2013) 0.81
Childhood brain tumor survivors at risk for impaired health-related quality of life. J Pediatr Hematol Oncol (2013) 0.80
Volume of white matter hyperintensities is an independent predictor of intelligence quotient and processing speed in children with sickle cell disease. Br J Haematol (2014) 0.80
Neurofeedback to improve neurocognitive functioning of children treated for a brain tumor: design of a randomized controlled double-blind trial. BMC Cancer (2012) 0.79
Explorative study on the aftercare of pediatric brain tumor survivors: a parents' perspective. Support Care Cancer (2010) 0.79
Evaluation of cognitive and motor development in toddlers with congenital hypothyroidism diagnosed by neonatal screening. J Dev Behav Pediatr (2012) 0.78
Health-related quality of life and psychosocial developmental trajectory in young female beneficiaries with JIA. Rheumatology (Oxford) (2011) 0.78
Feasibility of an online cognitive behavioral-based group intervention for adolescents treated for cancer: a pilot study. J Psychosoc Oncol (2014) 0.78
Health- related quality of life and self-worth in 10-year old children with congenital hypothyroidism diagnosed by neonatal screening. Child Adolesc Psychiatry Ment Health (2012) 0.78
Effects of early thyroxine treatment on development and growth at age 10.7 years: follow-up of a randomized placebo-controlled trial in children with Down's syndrome. J Clin Endocrinol Metab (2014) 0.78
Health related quality of life in children with constipation-associated fecal incontinence. J Pediatr (2009) 0.78
Double disadvantage: a case control study on health-related quality of life in children with sickle cell disease. Health Qual Life Outcomes (2010) 0.77
Alexithymia in long-term survivors of childhood cancer. Pediatr Rehabil (2003) 0.77
A pilot study on peritraumatic dissociation and coping styles as risk factors for posttraumatic stress, anxiety and depression in parents after their child's unexpected admission to a Pediatric Intensive Care Unit. Child Adolesc Psychiatry Ment Health (2009) 0.77
Measuring perceived benefit and disease-related burden in young cancer survivors: validation of the Benefit and Burden Scale for Children (BBSC) in The Netherlands. Support Care Cancer (2011) 0.77
Quality of life and behavioral functioning in Dutch children with a history of Kawasaki disease. J Pediatr (2012) 0.77
A cognitive behavioral based group intervention for children with a chronic illness and their parents: a multicentre randomized controlled trial. BMC Pediatr (2011) 0.77
Health related quality of life and perceptions of child vulnerability among parents of children with a history of Kawasaki disease. Acta Paediatr (2014) 0.77
Quality of life in adults with end-stage renal disease since childhood is only partially impaired. Nephrol Dial Transplant (2003) 0.76
Children of non-Western origin with end-stage renal disease in the Netherlands, Belgium and a part of Germany have impaired health-related quality of life compared with Western children. Nephrol Dial Transplant (2013) 0.76
Impact of growing up with Fabry disease on achievement of psychosocial milestones and quality of life. Mol Genet Metab (2011) 0.75
Quality of life and behavioral functioning in Dutch pediatric patients with hereditary spherocytosis. Eur J Pediatr (2014) 0.75
Parental Distress and Quality of Life in Pediatric Inflammatory Bowel Disease: Implications for the Outpatient Clinic. J Pediatr Gastroenterol Nutr (2017) 0.75
Applicability and evaluation of a psychosocial intervention program for childhood cancer patients. Support Care Cancer (2015) 0.75
Psychometric properties and Dutch norm data of the PedsQL Multidimensional Fatigue Scale for Young Adults. Qual Life Res (2014) 0.75