Published in J Pediatr Psychol on December 01, 2003
Pragmatic Implementation Trial of a CF Primary Palliative Care Intervention | NCT04923880
Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. Health Qual Life Outcomes (2006) 2.53
Inhaled aztreonam lysine for chronic airway Pseudomonas aeruginosa in cystic fibrosis. Am J Respir Crit Care Med (2008) 2.05
Assessing weight-related quality of life in adolescents. Obesity (Silver Spring) (2006) 1.85
Evidence-based assessment of health-related quality of life and functional impairment in pediatric psychology. J Pediatr Psychol (2008) 1.77
Efficacy and safety of inhaled aztreonam lysine for airway pseudomonas in cystic fibrosis. Chest (2009) 1.73
Efficacy and safety of ivacaftor in patients aged 6 to 11 years with cystic fibrosis with a G551D mutation. Am J Respir Crit Care Med (2013) 1.73
Patient-reported outcomes in cystic fibrosis. Proc Am Thorac Soc (2007) 1.63
Insulin therapy to improve BMI in cystic fibrosis-related diabetes without fasting hyperglycemia: results of the cystic fibrosis related diabetes therapy trial. Diabetes Care (2009) 1.62
Early anti-pseudomonal acquisition in young patients with cystic fibrosis: rationale and design of the EPIC clinical trial and observational study'. Contemp Clin Trials (2009) 1.53
Burden of treatment for chronic illness: a concept analysis and review of the literature. Health Expect (2013) 1.38
Measuring health-related quality of life in young adolescents: reliability and validity in the Norwegian version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. Health Qual Life Outcomes (2006) 1.36
Disease activity, behavioral dysfunction, and health-related quality of life in adolescents with inflammatory bowel disease. Inflamm Bowel Dis (2010) 1.23
Validation of a parent-proxy, obesity-specific quality-of-life measure: sizing them up. Obesity (Silver Spring) (2008) 1.06
Measuring and reporting quality of life outcomes in clinical trials in cystic fibrosis: a critical review. Health Qual Life Outcomes (2005) 1.02
The daily dynamics of cystic fibrosis airway microbiota during clinical stability and at exacerbation. Microbiome (2015) 1.01
Lessons learned from a randomized trial of airway secretion clearance techniques in cystic fibrosis. Pediatr Pulmonol (2010) 0.99
Update of respiratory tract disease in children with primary ciliary dyskinesia. Proc Am Thorac Soc (2011) 0.98
Predictors of long-term health-related quality of life in adolescent solid organ transplant recipients. J Pediatr Psychol (2011) 0.92
Screening for symptoms of depression and anxiety in adolescents and young adults with cystic fibrosis. Pediatr Pulmonol (2010) 0.88
Changes in pediatric health-related quality of life in cystic fibrosis after IV antibiotic treatment for pulmonary exacerbations. J Clin Psychol Med Settings (2010) 0.88
Children with disorders of sex development: A qualitative study of early parental experience. Int J Pediatr Endocrinol (2011) 0.88
Health-related quality of life of Spanish children with cystic fibrosis. Qual Life Res (2012) 0.86
Longitudinal trends in health-related quality of life in adults with cystic fibrosis. Chest (2013) 0.85
Relationships among health-related quality of life, pulmonary health, and newborn screening for cystic fibrosis. Chest (2010) 0.84
Dermatoglyphic patterns in cystic fibrosis children. Iran J Pediatr (2014) 0.84
Lung transplantation for cystic fibrosis. Proc Am Thorac Soc (2009) 0.83
Clinical Characteristics and Lung Function in Older Children Vertically Infected With Human Immunodeficiency Virus in Malawi. J Pediatric Infect Dis Soc (2015) 0.83
Assessing whether measurement invariance of the KIDSCREEN-27 across child-parent dyad depends on the child gender: a multiple group confirmatory factor analysis. Glob J Health Sci (2014) 0.81
Nutritional Status Improved in Cystic Fibrosis Patients with the G551D Mutation After Treatment with Ivacaftor. Dig Dis Sci (2015) 0.81
Nutritional status is associated with health-related quality of life in children with cystic fibrosis aged 9-19 years. J Cyst Fibros (2013) 0.81
A longitudinal examination of health-related quality of life in children and adolescents with spina bifida. J Pediatr Psychol (2014) 0.79
Health-related quality of life in children with cystic fibrosis: validation of the German CFQ-R. Health Qual Life Outcomes (2009) 0.78
Pulmonary exacerbations in cystic fibrosis and bronchiectasis. Thorax (2007) 0.78
Health-related quality of life in children and adolescents with cystic fibrosis: convergent validity with parent-reports and objective measures of pulmonary health. J Dev Behav Pediatr (2013) 0.77
Quality of life among children with velocardiofacial syndrome. Cleft Palate Craniofac J (2010) 0.77
The Use of Home Spirometry in Pediatric Cystic Fibrosis Patients: Results of a Feasibility Study. Glob Pediatr Health (2017) 0.75
Yoga Therapy in Children with Cystic Fibrosis Decreases Immediate Anxiety and Joint Pain. Evid Based Complement Alternat Med (2016) 0.75
Effect of Oral Lipid Matrix Supplement on Fat Absorption in Cystic Fibrosis: A Randomized Placebo-Controlled Trial. J Pediatr Gastroenterol Nutr (2016) 0.75
Quality of life in children with CF: Psychometrics and relations with stress and mealtime behaviors. Pediatr Pulmonol (2014) 0.75
Application of dyadic data analysis in pediatric psychology: cystic fibrosis health-related quality of life and anxiety in child-caregiver dyads. J Pediatr Psychol (2012) 0.75
Lumacaftor/Ivacaftor in Patients Aged 6-11 Years With Cystic Fibrosis Homozygous for F508del-CFTR. Am J Respir Crit Care Med (2016) 0.75
Azithromycin in patients with cystic fibrosis chronically infected with Pseudomonas aeruginosa: a randomized controlled trial. JAMA (2003) 4.31
Spoken language development in children following cochlear implantation. JAMA (2010) 3.35
Barriers to treatment adherence for children with cystic fibrosis and asthma: what gets in the way? J Pediatr Psychol (2006) 2.22
A multi-method assessment of treatment adherence for children with cystic fibrosis. J Cyst Fibros (2006) 2.11
Inhaled aztreonam lysine for chronic airway Pseudomonas aeruginosa in cystic fibrosis. Am J Respir Crit Care Med (2008) 2.05
Evidence-based assessment of health-related quality of life and functional impairment in pediatric psychology. J Pediatr Psychol (2008) 1.77
Efficacy and safety of inhaled aztreonam lysine for airway pseudomonas in cystic fibrosis. Chest (2009) 1.73
Association of observed family relationship quality and problem-solving skills with treatment adherence in older children and adolescents with cystic fibrosis. J Pediatr Psychol (2004) 1.72
Patient-reported outcomes in cystic fibrosis. Proc Am Thorac Soc (2007) 1.63
Controlled evaluation of the STARBRIGHT CD-ROM program for children and adolescents with Cystic Fibrosis. J Pediatr Psychol (2004) 1.57
Predicting behavior problems in deaf and hearing children: the influences of language, attention, and parent-child communication. Dev Psychopathol (2009) 1.46
Patient-reported outcomes: instrument development and selection issues. Value Health (2007) 1.46
Cell phone intervention to improve adherence: cystic fibrosis care team, patient, and parent perspectives. Pediatr Pulmonol (2010) 1.41
An 18-month study of the safety and efficacy of repeated courses of inhaled aztreonam lysine in cystic fibrosis. Pediatr Pulmonol (2010) 1.37
Measuring and improving respiratory outcomes in cystic fibrosis lung disease: opportunities and challenges to therapy. J Cyst Fibros (2009) 1.35
Speech recognition at 1-year follow-up in the childhood development after cochlear implantation study: Methods and preliminary findings. Audiol Neurootol (2006) 1.31
Randomized clinical trial of behavioral intervention and nutrition education to improve caloric intake and weight in children with cystic fibrosis. Arch Pediatr Adolesc Med (2009) 1.25
Longitudinal assessment of health-related quality of life in an observational cohort of patients with cystic fibrosis. Pediatr Pulmonol (2010) 1.23
Tracking development of speech recognition: longitudinal data from hierarchical assessments in the Childhood Development after Cochlear Implantation Study. Otol Neurotol (2008) 1.20
Influence of implantation age on school-age language performance in pediatric cochlear implant users. Int J Audiol (2013) 1.17
Language development after cochlear implantation: an epigenetic model. J Neurodev Disord (2011) 1.12
Adherence with tobramycin inhaled solution and health care utilization. BMC Pulm Med (2011) 1.11
Trajectories of adherence to airway clearance therapy for patients with cystic fibrosis. J Pediatr Psychol (2010) 1.10
Depressive symptoms in children with cystic fibrosis and parents and its effects on adherence to airway clearance. Pediatr Pulmonol (2010) 1.10
Identification of effective strategies to promote language in deaf children with cochlear implants. Child Dev (2012) 1.04
Anxiety and depression in cystic fibrosis. Semin Respir Crit Care Med (2009) 1.03
Parenting Stress among Parents of Deaf and Hearing Children: Associations with Language Delays and Behavior Problems. Parent Sci Pract (2010) 1.03
Prevalence of symptoms of anxiety and depression in German patients with cystic fibrosis. Chest (2010) 1.02
Treatment complexity in cystic fibrosis: trends over time and associations with site-specific outcomes. J Cyst Fibros (2013) 1.00
Assessing disease disclosure in adults with cystic fibrosis: the Adult Data for Understanding Lifestyle and Transitions (ADULT) survey Disclosure of disease in adults with cystic fibrosis. BMC Pulm Med (2010) 1.00
Depression and anxiety symptoms in bronchiectasis: associations with health-related quality of life. Qual Life Res (2012) 1.00
Lessons learned from a randomized trial of airway secretion clearance techniques in cystic fibrosis. Pediatr Pulmonol (2010) 0.99
Validation of the Dutch cystic fibrosis questionnaire (CFQ) in adolescents and adults. J Cyst Fibros (2004) 0.94
Behavioral inhibition, self-regulation of motivation, and working memory in children with attention deficit hyperactivity disorder. Dev Neuropsychol (2002) 0.93
Nationwide trends in the medical care costs of privately insured patients with cystic fibrosis (CF), 2001-2007. Pediatr Pulmonol (2011) 0.93
"I honestly believe god keeps me healthy so i can take care of my child": parental use of faith related to treatment adherence. J Health Care Chaplain (2013) 0.91
Risk factors associated with depressive symptoms in caregivers of children with type 1 diabetes or cystic fibrosis. J Pediatr Psychol (2010) 0.90
Study of a novel pancreatic enzyme replacement therapy in pancreatic insufficient subjects with cystic fibrosis. J Pediatr (2006) 0.89
Psychological interventions for individuals with cystic fibrosis and their families. Cochrane Database Syst Rev (2014) 0.89
Changes in pediatric health-related quality of life in cystic fibrosis after IV antibiotic treatment for pulmonary exacerbations. J Clin Psychol Med Settings (2010) 0.88
The effects of an intensive behavior and nutrition intervention compared to standard of care on weight outcomes in CF. Pediatr Pulmonol (2010) 0.88
Mealtime problems predict outcome in clinical trial to improve nutrition in children with CF. Pediatr Pulmonol (2010) 0.88
Impact of bronchiectasis and trapped air on quality of life and exacerbations in cystic fibrosis. Eur Respir J (2013) 0.88
Assessing joint attention and symbolic play in children with cochlear implants and multiple disabilities: two case studies. Otol Neurotol (2008) 0.85
Language and behavioral outcomes in children with developmental disabilities using cochlear implants. Otol Neurotol (2012) 0.84
Timing of cochlear implantation and parents' global ratings of children's health and development. Otol Neurotol (2012) 0.83
Psychological interventions for people with cystic fibrosis and their families. Cochrane Database Syst Rev (2008) 0.83
Anxiety, depression, and life satisfaction in parents caring for children with cystic fibrosis. Pediatr Pulmonol (2011) 0.83
Lung transplantation for cystic fibrosis. Proc Am Thorac Soc (2009) 0.83
Challenges of disorders of sex development: diverse perceptions across stakeholders. Horm Res Paediatr (2012) 0.83
Treatment adherence and health outcomes in patients with bronchiectasis. BMC Pulm Med (2014) 0.82
Pulmonary exacerbations and parent-reported outcomes in children <6 years with cystic fibrosis. Pediatr Pulmonol (2014) 0.81
Linguistic validation of cystic fibrosis quality of life questionnaires. J Pediatr (Rio J) (2006) 0.81
Examining the construct validity of the Eating Disorder Inventory. Psychol Assess (2003) 0.81
Age-dependent cost-utility of pediatric cochlear implantation. Ear Hear (2013) 0.81
Daily pain in adolescents with CF: Effects on adherence, psychological symptoms, and health-related quality of life. Pediatr Pulmonol (2014) 0.80
Utilization of patient-reported outcomes as a step towards collaborative medicine. Paediatr Respir Rev (2013) 0.80
Assessing health-related quality of life in disorders of sex development: phase I - item generation. Adv Exp Med Biol (2011) 0.79
A Prospective Longitudinal Study of U.S. Children Unable to Achieve Open-Set Speech Recognition 5 Years After Cochlear Implantation. Otol Neurotol (2015) 0.78
Reliability and validity of the Cystic Fibrosis Questionnaire-Revised for children and parents in Turkey: cross-sectional study. Qual Life Res (2012) 0.78
Tracking CF disease progression with CT and respiratory symptoms in a cohort of children aged 6-19 years. Pediatr Pulmonol (2014) 0.77
Assessment of health-related quality of life 6 years after childhood cochlear implantation. Qual Life Res (2013) 0.77
Cystic fibrosis research in allied health and nursing professions. J Cyst Fibros (2012) 0.77
Long-term effects of pregnancy and motherhood on disease outcomes of women with cystic fibrosis. Ann Am Thorac Soc (2013) 0.77
Development of joint engagement in young deaf and hearing children: effects of chronological age and language skills. J Speech Lang Hear Res (2014) 0.75
Comparisons of Longitudinal Trajectories of Social Competence: Parent Ratings of Children With Cochlear Implants Versus Hearing Peers. Otol Neurotol (2016) 0.75
Validation of a Quality of Life Questionnaire for Bronchiectasis: psychometric analyses of the Spanish QOL-B-V3.0. Qual Life Res (2013) 0.75