Published in Qual Life Res on May 01, 2008
A survey on self-assessed well-being in a cohort of chronic locked-in syndrome patients: happy majority, miserable minority. BMJ Open (2011) 1.12
Can capabilities be self-reported? A think aloud study. Soc Sci Med (2013) 0.96
Psychometric properties of two physical activity questionnaires, the AQuAA and the PASE, in cancer patients. BMC Med Res Methodol (2011) 0.89
"It's hard to tell": the challenges of scoring patients on standardised outcome measures by multidisciplinary teams: a case study of neurorehabilitation. BMC Health Serv Res (2008) 0.83
Exploration of the content validity and feasibility of the EQ-5D-3L, ICECAP-O and ASCOT in older adults. BMC Health Serv Res (2015) 0.81
Using a retrospective pretest instead of a conventional pretest is replacing biases: a qualitative study of cognitive processes underlying responses to thentest items. Qual Life Res (2015) 0.78
Identifying functional impairment and rehabilitation needs in patients newly diagnosed with inoperable lung cancer: a structured literature review. Support Care Cancer (2016) 0.77
Anticipated adaptation or scale recalibration? Health Qual Life Outcomes (2013) 0.75
The Humanistic Burden of Small Cell Lung Cancer (SCLC): A Systematic Review of Health-Related Quality of Life (HRQoL) Literature. Front Pharmacol (2017) 0.75
The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst (1993) 38.99
Qualitative research in health care. Assessing quality in qualitative research. BMJ (2000) 16.24
Attitudes to chemotherapy: comparing views of patients with cancer with those of doctors, nurses, and general public. BMJ (1990) 8.90
Integrating response shift into health-related quality of life research: a theoretical model. Soc Sci Med (1999) 6.83
Methodological approaches for assessing response shift in longitudinal health-related quality-of-life research. Soc Sci Med (1999) 4.04
The EORTC QLQ-LC13: a modular supplement to the EORTC Core Quality of Life Questionnaire (QLQ-C30) for use in lung cancer clinical trials. EORTC Study Group on Quality of Life. Eur J Cancer (1994) 3.45
The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a review. J Clin Epidemiol (1992) 3.39
Toward a theoretical model of quality-of-life appraisal: Implications of findings from studies of response shift. Health Qual Life Outcomes (2004) 2.33
Cancer patients, doctors and nurses vary in their willingness to undertake cancer chemotherapy. Eur J Cancer (1995) 1.78
Assessing the quality of life of patients in phase I and II anti-cancer drug trials: interviews versus questionnaires. Soc Sci Med (2003) 1.69
Underreporting by cancer patients: the case of response-shift. Soc Sci Med (1991) 1.57
Revealing response shift in longitudinal research on fatigue--the use of the thentest approach. Acta Oncol (1999) 1.48
Redefining health: living with cancer. Soc Sci Med (1993) 1.39
Discrepancies between self-reported and observed physical function in the elderly: the influence of response shift and other factors. Soc Sci Med (1999) 1.31
Effects of framing and level of probability on patients' preferences for cancer chemotherapy. J Clin Epidemiol (1989) 1.30
Value of caregiver ratings in evaluating the quality of life of patients with cancer. J Clin Oncol (1997) 1.28
Scaling back goals and recalibration of the affect system are processes in normal adaptive self-regulation: understanding 'response shift' phenomena. Soc Sci Med (2000) 1.28
Measurement of health-related quality of life in multiple myeloma. Nordic Myeloma Study Group. Br J Haematol (1996) 1.09
Life satisfaction and well-being measures in ventilator assisted individuals with traumatic tetraplegia. Arch Phys Med Rehabil (1994) 1.08
[The "Well-being paradox" in quality-of-life research]. Psychother Psychosom Med Psychol (2002) 1.07
Response-shift bias: a challenge to the assessment of patients' quality of life in cancer clinical trials. Cancer Treat Rev (1996) 1.07
Clinical understanding and clinical implications of response shift. Soc Sci Med (1999) 1.03
Patients versus surrogates: whose opinion counts on ethics review panels? Clin Res (1989) 1.02
The Short-Form 36 and older people: some problems encountered when using postal administration. J Epidemiol Community Health (1998) 1.00
Uncertainty, appraisal and quality of life. Qual Life Res (1992) 0.99
Anxiety and depression in breast cancer patients at low risk of recurrence compared with the general population: a valid comparison? J Clin Epidemiol (1999) 0.99
Small-cell lung cancer patients are just 'a little bit' tired: response shift and self-presentation in the measurement of fatigue. Qual Life Res (2007) 0.98
Quality-of-life considerations in patients with advanced lung cancer: effect of topotecan on symptom palliation and quality of life. Oncologist (2004) 0.90
Individual quality of life of patients undergoing autologous peripheral blood stem cell transplantation. Psychooncology (2004) 0.87
Problems eliciting cues in SEIQoL-DW: quality of life areas in small-cell lung cancer patients. Qual Life Res (2006) 0.82
Change in what matters to palliative patients: eliciting information about adaptation with SEIQoL-DW. Palliat Med (2007) 0.82
Laparoscopy in combination with fast track multimodal management is the best perioperative strategy in patients undergoing colonic surgery: a randomized clinical trial (LAFA-study). Ann Surg (2011) 7.50
Multiple common variants for celiac disease influencing immune gene expression. Nat Genet (2010) 6.90
Management of lung nodules detected by volume CT scanning. N Engl J Med (2009) 6.79
End-of-life decision-making in six European countries: descriptive study. Lancet (2003) 5.16
Physician reports of terminal sedation without hydration or nutrition for patients nearing death in the Netherlands. Ann Intern Med (2004) 4.66
End-of-life practices in the Netherlands under the Euthanasia Act. N Engl J Med (2007) 4.21
Trans-eQTLs reveal that independent genetic variants associated with a complex phenotype converge on intermediate genes, with a major role for the HLA. PLoS Genet (2011) 3.65
Randomized phase III trial of maintenance bevacizumab with or without pemetrexed after first-line induction with bevacizumab, cisplatin, and pemetrexed in advanced nonsquamous non-small-cell lung cancer: AVAPERL (MO22089). J Clin Oncol (2013) 3.63
Common variants in 22 loci are associated with QRS duration and cardiac ventricular conduction. Nat Genet (2010) 3.55
Euthanasia and physician-assisted suicide among patients with amyotrophic lateral sclerosis in the Netherlands. N Engl J Med (2002) 3.51
Characteristics of lung cancers detected by computer tomography screening in the randomized NELSON trial. Am J Respir Crit Care Med (2013) 3.47
Lung function decline in male heavy smokers relates to baseline airflow obstruction severity. Chest (2012) 2.77
Granted, undecided, withdrawn, and refused requests for euthanasia and physician-assisted suicide. Arch Intern Med (2005) 2.75
Understanding self-rated health. Lancet (2002) 2.70
Euthanasia and other end-of-life decisions in the Netherlands in 1990, 1995, and 2001. Lancet (2003) 2.68
Baseline quality of life as a prognostic indicator of survival: a meta-analysis of individual patient data from EORTC clinical trials. Lancet Oncol (2009) 2.64
Patient record review of the incidence, consequences, and causes of diagnostic adverse events. Arch Intern Med (2010) 2.60
Factors reported to influence the return to work of cancer survivors: a literature review. Psychooncology (2002) 2.45
Unraveling the regulatory mechanisms underlying tissue-dependent genetic variation of gene expression. PLoS Genet (2012) 2.29
Legal physician-assisted dying in Oregon and the Netherlands: evidence concerning the impact on patients in "vulnerable" groups. J Med Ethics (2007) 2.27
The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease. J Clin Epidemiol (2002) 2.25
CT-quantified emphysema in male heavy smokers: association with lung function decline. Thorax (2011) 2.20
Terminal sedation and euthanasia: a comparison of clinical practices. Arch Intern Med (2006) 2.18
Common and different genetic background for rheumatoid arthritis and coeliac disease. Hum Mol Genet (2009) 2.15
The patient simple clinical colitis activity index (P-SCCAI) can detect ulcerative colitis (UC) disease activity in remission: a comparison of the P-SCCAI with clinician-based SCCAI and biological markers. J Crohns Colitis (2012) 2.12
Medical end-of-life decisions for children in the Netherlands. Arch Pediatr Adolesc Med (2005) 2.09
The clinical significance of adaptation to changing health: a meta-analysis of response shift. Qual Life Res (2006) 2.08
Randomized phase II and pharmacogenetic study of pemetrexed compared with pemetrexed plus carboplatin in pretreated patients with advanced non-small-cell lung cancer. J Clin Oncol (2009) 2.06
Traditional versus up-front [18F] fluorodeoxyglucose-positron emission tomography staging of non-small-cell lung cancer: a Dutch cooperative randomized study. J Clin Oncol (2006) 2.01
The development of the EORTC QLQ-C15-PAL: a shortened questionnaire for cancer patients in palliative care. Eur J Cancer (2005) 1.97
Relating faults in diagnostic reasoning with diagnostic errors and patient harm. Acad Med (2012) 1.92
Withholding antibiotic treatment in pneumonia patients with dementia: a quantitative observational study. Arch Intern Med (2002) 1.92
The suitability of quality-of-life questionnaires for psoriasis research: a systematic literature review. Arch Dermatol (2002) 1.84
Quality of life in newly diagnosed cancer patients waiting for surgery is seriously impaired. J Surg Oncol (2006) 1.82
Genome-wide study of percent emphysema on computed tomography in the general population. The Multi-Ethnic Study of Atherosclerosis Lung/SNP Health Association Resource Study. Am J Respir Crit Care Med (2014) 1.80
Patients' perceptions of the side-effects of prostate cancer treatment--a qualitative interview study. Soc Sci Med (2006) 1.76
Genome-wide association study of coronary and aortic calcification implicates risk loci for coronary artery disease and myocardial infarction. Atherosclerosis (2013) 1.69
Predictors and correlates of adherence to combination antiretroviral therapy (ART) for chronic HIV infection: a meta-analysis. BMC Med (2014) 1.69
The euthanasia law in Belgium and the Netherlands. Lancet (2003) 1.67
Design of a retrospective patient record study on the occurrence of adverse events among patients in Dutch hospitals. BMC Health Serv Res (2007) 1.61
Comparing higher order models for the EORTC QLQ-C30. Qual Life Res (2011) 1.60
Thalidomide versus active supportive care for maintenance in patients with malignant mesothelioma after first-line chemotherapy (NVALT 5): an open-label, multicentre, randomised phase 3 study. Lancet Oncol (2013) 1.59
Public experiences, knowledge and expectations about medical genetics and the use of genetic information. Community Genet (2004) 1.58
Pharmacokinetics of gemcitabine in non-small-cell lung cancer patients: impact of the 79A>C cytidine deaminase polymorphism. Eur J Clin Pharmacol (2010) 1.55
Discomfort in nursing home patients with severe dementia in whom artificial nutrition and hydration is forgone. Arch Intern Med (2005) 1.53
An application of structural equation modeling to detect response shifts and true change in quality of life data from cancer patients undergoing invasive surgery. Qual Life Res (2005) 1.53
Severe dementia and adverse outcomes of nursing home-acquired pneumonia: evidence for mediation by functional and pathophysiological decline. J Am Geriatr Soc (2002) 1.52
Progress in standard of care therapy and modest survival benefits in the treatment of non-small cell lung cancer patients in the Netherlands in the last 20 years. J Thorac Oncol (2012) 1.51
EORTC QLQ-C15-PAL: the new standard in the assessment of health-related quality of life in advanced cancer? Palliat Med (2006) 1.49
Reflections on genes and sustainable change: toward a trait and state conceptualization of response shift. J Clin Epidemiol (2009) 1.48
Feeding nursing home patients with severe dementia: a qualitative study. J Adv Nurs (2003) 1.47
Dementia, lower respiratory tract infection, and long-term mortality. J Am Med Dir Assoc (2007) 1.46
Novel genes for airway wall thickness identified with combined genome-wide association and expression analyses. Am J Respir Crit Care Med (2015) 1.44
Volumetric computed tomography screening for lung cancer: three rounds of the NELSON trial. Eur Respir J (2013) 1.42
End-of-life decision making in neonates and infants: comparison of The Netherlands and Belgium (Flanders). Acta Paediatr (2007) 1.42
Physicians' willingness to grant requests for assistance in dying for children: a study of hypothetical cases. J Pediatr (2005) 1.42
The inter-rater agreement of retrospective assessments of adverse events does not improve with two reviewers per patient record. J Clin Epidemiol (2009) 1.40
Methods to detect response shift in quality of life data: a convergent validity study. Qual Life Res (2005) 1.39
Continuous deep sedation: physicians' experiences in six European countries. J Pain Symptom Manage (2006) 1.39
Dying at home or in an institution using death certificates to explore the factors associated with place of death. Health Policy (2005) 1.39
To what extent are adverse events found in patient records reported by patients and healthcare professionals via complaints, claims and incident reports? BMC Health Serv Res (2011) 1.39
The role of patient safety culture in the causation of unintended events in hospitals. J Clin Nurs (2012) 1.38
The 15q24/25 susceptibility variant for lung cancer and chronic obstructive pulmonary disease is associated with emphysema. Am J Respir Crit Care Med (2009) 1.36
Work-related disease in general practice: a systematic review. Fam Pract (2005) 1.35
Developing core outcomes sets: methods for identifying and including patient-reported outcomes (PROs). Trials (2014) 1.34
Health care providers underestimate symptom intensities of cancer patients: a multicenter European study. Health Qual Life Outcomes (2010) 1.34
Thymic epithelial tumours: a population-based study of the incidence, diagnostic procedures and therapy. Eur J Cancer (2008) 1.33
The nature and causes of unintended events reported at ten emergency departments. BMC Emerg Med (2009) 1.33
Transforming growth factor-beta plasma dynamics and post-irradiation lung injury in lung cancer patients. Radiother Oncol (2004) 1.33
Current concepts in the mediastinal lymph node staging of nonsmall cell lung cancer. Ann Surg (2003) 1.33
Using death certificate data to study place of death in 9 European countries: opportunities and weaknesses. BMC Public Health (2007) 1.31
Expression of TRAIL and TRAIL death receptors in stage III non-small cell lung cancer tumors. Clin Cancer Res (2003) 1.29
A multicenter phase II study of erlotinib and sorafenib in chemotherapy-naive patients with advanced non-small cell lung cancer. Clin Cancer Res (2010) 1.29
Pneumonia: the demented patient's best friend? Discomfort after starting or withholding antibiotic treatment. J Am Geriatr Soc (2002) 1.28
Are pregnant women making informed choices about prenatal screening? Genet Med (2005) 1.27
Guidelines for improving the stringency of response shift research using the thentest. Qual Life Res (2010) 1.27
Are the most distressing concerns of patients with inoperable lung cancer adequately assessed? A mixed-methods analysis. J Clin Oncol (2010) 1.25
The last 3 months of life: care, transitions and the place of death of older people. Health Soc Care Community (2005) 1.25
Attitudes of physicians, nurses and relatives towards end-of-life decisions concerning nursing home patients with dementia. Patient Educ Couns (2005) 1.24
Selective targeting of homologous DNA recombination repair by gemcitabine. Int J Radiat Oncol Biol Phys (2003) 1.23
Symptom prevalence, intensity, and distress in patients with inoperable lung cancer in relation to time of death. J Clin Oncol (2007) 1.23
The role of conventional bronchoscopy in the workup of suspicious CT scan screen-detected pulmonary nodules. Chest (2012) 1.23
Direct medical costs of adverse events in Dutch hospitals. BMC Health Serv Res (2009) 1.22
Defining the patient population: one of the problems for palliative care research. Palliat Med (2006) 1.21
Monitoring response to antiangiogenic therapy in non-small cell lung cancer using imaging markers derived from PET and dynamic contrast-enhanced MRI. J Nucl Med (2010) 1.19
European public acceptance of euthanasia: socio-demographic and cultural factors associated with the acceptance of euthanasia in 33 European countries. Soc Sci Med (2006) 1.18
Medical end-of-life decisions made for neonates and infants in the Netherlands, 1995-2001. Lancet (2005) 1.18
Interdisciplinary cooperation of GPs in palliative care at home: a nationwide survey in The Netherlands. Scand J Prim Health Care (2007) 1.17
Informed decision making in the context of prenatal screening. Patient Educ Couns (2005) 1.17
Accepting or declining the offer of prenatal screening for congenital defects: test uptake and women's reasons. Prenat Diagn (2005) 1.16
An oncological view on the blood-testis barrier. Lancet Oncol (2002) 1.15
End-of-life decision making in Europe and Australia: a physician survey. Arch Intern Med (2006) 1.14
Enhanced provider communication and patient education regarding return to work in cancer survivors following curative treatment: a pilot study. J Occup Rehabil (2006) 1.14
High physical and psychosocial load at work and sickness absence due to neck pain. Scand J Work Environ Health (2002) 1.13
Treatment of nursing home residents with dementia and lower respiratory tract infection in the United States and The Netherlands: an ocean apart. J Am Geriatr Soc (2004) 1.13
Differences between terminally ill cancer patients who died after euthanasia had been performed and terminally ill cancer patients who did not request euthanasia. Palliat Med (2005) 1.13
Quantitative assessment of P-glycoprotein function in the rat blood-brain barrier by distribution volume of [11C]verapamil measured with PET. Neuroimage (2003) 1.13
A simulation study provided sample size guidance for differential item functioning (DIF) studies using short scales. J Clin Epidemiol (2008) 1.12
Differential item functioning (DIF) analyses of health-related quality of life instruments using logistic regression. Health Qual Life Outcomes (2010) 1.11
Trends in acceptance of euthanasia among the general public in 12 European countries (1981-1999). Eur J Public Health (2006) 1.10