Published in Health Qual Life Outcomes on November 03, 2008
Quality of life among parents of children with phenylketonuria (PKU). Health Qual Life Outcomes (2013) 0.94
Quality of life and congenital heart disease in childhood and adolescence. Arq Bras Cardiol (2013) 0.88
Parenting a child with phenylketonuria or galactosemia: implications for health-related quality of life. J Inherit Metab Dis (2011) 0.87
The supportive care needs of parents with a child with a rare disease: results of an online survey. BMC Fam Pract (2016) 0.86
Infant temperament and parental stress in 3-month-old infants after surgery for complex congenital heart disease. J Dev Behav Pediatr (2010) 0.86
Familial impact and coping with child heart disease: a systematic review. Pediatr Cardiol (2015) 0.83
Health status in patients at risk of inherited arrhythmias and sudden unexpected death compared to the general population. BMC Med Genet (2010) 0.83
Assessing health-related quality-of-life changes in informal caregivers: an evaluation in parents of children with major congenital anomalies. Qual Life Res (2011) 0.81
The effect of educational program on the quality of life and self-efficacy of the mothers of the infants with congenital heart disease: a randomized controlled trial. Int J Community Based Nurs Midwifery (2014) 0.80
Sleep quality, stress, caregiver burden, and quality of life in maternal caregivers of young children with bronchopulmonary dysplasia. J Pediatr Nurs (2013) 0.79
From adolescents to adults with congenital heart disease: the role of transition. Eur J Pediatr (2015) 0.78
Functional health status in children and adolescents after Fontan: comparison of generic and disease-specific assessments. Cardiol Young (2013) 0.77
Quality of life of children with mitral valve prolapse. Qual Life Res (2010) 0.77
Effect of Instructing Care Program Through Group Discussion on the Quality of Life of the Parents of the Children Afflicted With Leukemia. Glob J Health Sci (2015) 0.75
Empowerment of the rural parents/caregivers of children with heart diseases in Namibia to facilitate coping with the demands of caring at home. Glob J Health Sci (2012) 0.75
The plight of parents/caregivers of children with heart disease in the rural areas of Namibia: a problem of coping. Glob J Health Sci (2012) 0.75
Health-related quality of life, anxiety and depression in parents of adolescents with Gilles de la Tourette syndrome: a controlled study. Eur Child Adolesc Psychiatry (2016) 0.75
Incidence of congenital heart disease: I. Postnatal incidence. Pediatr Cardiol (1995) 3.48
The proxy problem: child report versus parent report in health-related quality of life research. Qual Life Res (1998) 3.13
Life course impacts of parenting a child with a disability. Am J Ment Retard (2001) 1.87
Quality of life in patients with cystic fibrosis and their parents: what is important besides disease severity? Thorax (1998) 1.74
Correlates of quality of life with epilepsy. Indian J Pediatr (2005) 1.59
Health-related quality of life in pediatric bone marrow transplant survivors: according to whom? Int J Cancer Suppl (1999) 1.44
Chronic illness in infancy and parenting stress: a comparison of three groups of parents. J Pediatr Psychol (1990) 1.24
Quality of life among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children. Qual Life Res (2003) 1.23
Fathers and mothers of school-age children with developmental disabilities: parental stress, family functioning, and social support. Am J Ment Retard (1997) 1.22
Health at age 11: reports from schoolchildren and their parents. Arch Dis Child (1998) 1.16
Predictors of parental emotional adjustment to childhood cancer. Psychooncology (1997) 1.15
Psychometric properties of a new measure of fathers' involvement in the management of pediatric chronic diseases. J Pediatr Psychol (2004) 1.12
Empowerment or discouragement: women's experience of caring and uncaring encounters during childbirth. Health Care Women Int (1996) 0.97
The effects of camp on health-related quality of life in children with chronic illnesses: a review of the literature. J Pediatr Oncol Nurs (2005) 0.96
The handicapped child: psychological effects of parental, marital, and sibling relationships. Psychiatr Clin North Am (1991) 0.94
The dilemmas of parents of adolescents and young adults with congenital heart disease. Heart Lung (1997) 0.93
The Paediatric Asthma Caregiver's Quality of Life Questionnaire in Swedish parents. Acta Paediatr (2001) 0.91
Self-perceived health in Swedish parents of children with Down's syndrome. Qual Life Res (2000) 0.88
Young traffic victims' long-term health-related quality of life: child self-reports and parental reports. Arch Phys Med Rehabil (2003) 0.88
Stressors experienced by family caregivers of children with pervasive developmental disorders. Child Psychiatry Hum Dev (1991) 0.87
Parents of children with cerebral palsy in Nordland (county in the north of Norway); factors connected to their quality of life and coping of the circumstances around the handicapped child. Arctic Med Res (1994) 0.86
Benzathine penicillin formulations. Pediatr Infect Dis J (2004) 0.75