Direct-to-consumer genome scanning services. Also for children?

PubWeight™: 1.00‹?› | Rank: Top 15%

🔗 View Article (PMID 19030022)

Published in Nat Rev Genet on January 01, 2009

Authors

Pascal Borry1, Heidi C Howard, Karine Sénécal, Denise Avard

Author Affiliations

1: Centre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, Kapucijnenvoer 35, 3000 Leuven, Belgium. Pascal.Borry@med.kuleuven.be

Articles citing this

Genetic testing and common disorders in a public health framework: how to assess relevance and possibilities. Background Document to the ESHG recommendations on genetic testing and common disorders. Eur J Hum Genet (2011) 1.57

Legislation on direct-to-consumer genetic testing in seven European countries. Eur J Hum Genet (2012) 1.53

Incidental findings of uncertain significance: To know or not to know - that is not the question. BMC Med Ethics (2016) 1.39

Where are you going, where have you been: a recent history of the direct-to-consumer genetic testing market. J Community Genet (2010) 1.28

Users' motivations to purchase direct-to-consumer genome-wide testing: an exploratory study of personal stories. J Community Genet (2011) 1.28

Is there a doctor in the house? : The presence of physicians in the direct-to-consumer genetic testing context. J Community Genet (2011) 1.25

Parents' attitudes toward pediatric genetic testing for common disease risk. Pediatrics (2011) 1.18

Health-related direct-to-consumer genetic testing: a review of companies' policies with regard to genetic testing in minors. Fam Cancer (2009) 1.18

Are the kids really all right? Direct-to-consumer genetic testing in children: are company policies clashing with professional norms? Eur J Hum Genet (2011) 0.98

Ethical issues of predictive genetic testing for diabetes. J Diabetes Sci Technol (2009) 0.89

Current issues in medically assisted reproduction and genetics in Europe: research, clinical practice, ethics, legal issues and policy. European Society of Human Genetics and European Society of Human Reproduction and Embryology. Eur J Hum Genet (2013) 0.87

New era for personalized medicine: the diagnosis and management of age-related macular degeneration. Clin Experiment Ophthalmol (2009) 0.83

Ethical considerations for pharmacogenomic testing in pediatric clinical care and research. Pharmacogenomics (2011) 0.81

Articles by these authors

Clinical management recommendations for surveillance and risk-reduction strategies for hereditary breast and ovarian cancer among individuals carrying a deleterious BRCA1 or BRCA2 mutation. J Obstet Gynaecol Can (2007) 2.09

Whole-genome sequencing in health care: recommendations of the European Society of Human Genetics. Eur J Hum Genet (2013) 1.93

Citizens' values regarding research with stored samples from newborn screening in Canada. Pediatrics (2012) 1.48

Legal approaches regarding health-care decisions involving minors: implications for next-generation sequencing. Eur J Hum Genet (2017) 1.39

Whole-genome sequencing in newborn screening programs. Sci Transl Med (2014) 1.34

Preconceptional genetic carrier testing and the commercial offer directly-to-consumers. Hum Reprod (2011) 1.32

Whole-genome sequencing in health care. Recommendations of the European Society of Human Genetics. Eur J Hum Genet (2013) 1.31

Reconsidering reproductive benefit through newborn screening: a systematic review of guidelines on preconception, prenatal and newborn screening. Eur J Hum Genet (2010) 1.29

Where are you going, where have you been: a recent history of the direct-to-consumer genetic testing market. J Community Genet (2010) 1.28

Users' motivations to purchase direct-to-consumer genome-wide testing: an exploratory study of personal stories. J Community Genet (2011) 1.28

The expansion of newborn screening: is reproductive benefit an appropriate pursuit? Nat Rev Genet (2009) 1.21

Health-related direct-to-consumer genetic testing: a review of companies' policies with regard to genetic testing in minors. Fam Cancer (2009) 1.18

Evaluation of BRCA1 and BRCA2 mutation prevalence, risk prediction models and a multistep testing approach in French-Canadian families with high risk of breast and ovarian cancer. J Med Genet (2006) 1.17

Storing newborn blood spots: modern controversies. J Law Med Ethics (2004) 1.14

Pediatric research and the return of individual research results. J Law Med Ethics (2011) 1.14

Science and society: children and incompetent adults in genetic research: consent and safeguards. Nat Rev Genet (2002) 1.13

Hereditary motor and sensory neuropathy with agenesis of the corpus callosum. Ann Neurol (2003) 1.05

Cohort profile: the maternal-infant research on environmental chemicals research platform. Paediatr Perinat Epidemiol (2013) 1.03

Factors influencing intrafamilial communication of hereditary breast and ovarian cancer genetic information. Eur J Hum Genet (2009) 0.99

Are the kids really all right? Direct-to-consumer genetic testing in children: are company policies clashing with professional norms? Eur J Hum Genet (2011) 0.98

Personalized medicine and access to health care: potential for inequitable access? Eur J Hum Genet (2012) 0.92

Attitudes of Canadian researchers toward the return to participants of incidental and targeted genomic findings obtained in a pediatric research setting. Genet Med (2013) 0.91

"I prefer a child with …": designer babies, another controversial patent in the arena of direct-to-consumer genomics. Genet Med (2013) 0.90

A review of the barriers to sharing in biobanking. Biopreserv Biobank (2013) 0.90

Paediatric biobanks: what makes them so unique? J Paediatr Child Health (2011) 0.87

Recruiting terminally ill patients into non-therapeutic oncology studies: views of health professionals. BMC Med Ethics (2012) 0.87

Guidance for considering ethical, legal, and social issues in health technology assessment: application to genetic screening. Int J Technol Assess Health Care (2008) 0.86

Expectations and values about expanded newborn screening: a public engagement study. Health Expect (2013) 0.86

Physicians and genetic malpractice. Med Law (2002) 0.83

Emerging issues in paediatric health research consent forms in Canada: working towards best practices. BMC Med Ethics (2013) 0.83

Newborn blood spot screening in four countries: stakeholder involvement. J Public Health Policy (2008) 0.82

Exploring resources for intrafamilial communication of cancer genetic risk: we still need to talk. Eur J Hum Genet (2013) 0.82

Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening. Eur J Hum Genet (2015) 0.80

Vaccines of the 21st century and vaccinomics: data-enabled science meets global health to spark collective action for vaccine innovation. OMICS (2011) 0.80

Understanding umbilical cord blood banking: what women need to know before deciding. Womens Health Issues (2007) 0.80

Forward Look: Tenth Anniversary of the Human Genome Sequence and 21 Century Postgenomics Global Health - A Close Up on Africa and Women's Health. Curr Pharmacogenomics Person Med (2011) 0.79

Direct-to-consumer genetic testing: driving choice? Expert Rev Mol Diagn (2010) 0.79

Intrafamilial disclosure of risk for hereditary breast and ovarian cancer: points to consider. J Community Genet (2012) 0.79

Pharmacogenetics of opioids for the treatment of acute maternal pain during pregnancy and lactation. Curr Drug Metab (2012) 0.79

An ethical and legal overview of pharmacogenomics: perspectives and issues. Med Law (2008) 0.78

The communication of pharmacogenetic research results: participants weigh in on their informational needs in a pilot study. J Popul Ther Clin Pharmacol (2011) 0.78

Physician recruitment of patients to non-therapeutic oncology clinical trials: ethics revisited. Front Pharmacol (2013) 0.77

[Severe neuropathy with agenesis of the corpus callosum]. Med Sci (Paris) (2003) 0.77

Public concerns regarding the storage and secondary uses of residual newborn bloodspots: an analysis of print media, legal cases, and public engagement activities. J Community Genet (2014) 0.76

Genetic testing: anonymity of sperm donors under threat. Nature (2013) 0.75

Are we asking the right ethics questions on drug shortages? Suggestions for a global and anticipatory ethics framework. Am J Bioeth (2012) 0.75

Ethics, industry and 'animal farm'. Nat Biotechnol (2004) 0.75

Responsible implementation of expanded carrier screening. Eur J Hum Genet (2017) 0.75