Published in Value Health on September 25, 2009
Clinical Outcome Assessments: Conceptual Foundation-Report of the ISPOR Clinical Outcomes Assessment - Emerging Good Practices for Outcomes Research Task Force. Value Health (2015) 1.59
Patient-reported outcomes measurement information system (PROMIS) domain names and definitions revisions: further evaluation of content validity in IRT-derived item banks. Qual Life Res (2010) 1.48
Validation of the HOOS, JR: A Short-form Hip Replacement Survey. Clin Orthop Relat Res (2016) 1.43
Validation of the KOOS, JR: A Short-form Knee Arthroplasty Outcomes Survey. Clin Orthop Relat Res (2016) 1.32
Patient-reported outcome measures suitable to assessment of patient navigation. Cancer (2011) 1.09
The CONSORT Patient-Reported Outcome (PRO) extension: implications for clinical trials and practice. Health Qual Life Outcomes (2013) 1.02
Assessing model fit in joint models of longitudinal and survival data with applications to cancer clinical trials. Stat Med (2014) 1.01
Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs). Health Serv Insights (2013) 1.01
Measuring respiratory symptoms in clinical trials of COPD: reliability and validity of a daily diary. Thorax (2014) 0.98
Patient-reported outcome measures in arthroplasty registries. Acta Orthop (2016) 0.98
Interviewing to develop Patient-Reported Outcome (PRO) measures for clinical research: eliciting patients' experience. Health Qual Life Outcomes (2014) 0.97
Pain in castration-resistant prostate cancer with bone metastases: a qualitative study. Health Qual Life Outcomes (2011) 0.96
Proposing a standardized method for evaluating patient report of the intensity of dyspnea during exercise testing in COPD. Int J Chron Obstruct Pulmon Dis (2012) 0.94
Quality of life and functional vision concerns of children with cataracts and their parents. Eye (Lond) (2016) 0.92
Development of the Pediatric Quality of Life Inventory™ Eosinophilic Esophagitis module items: qualitative methods. BMC Gastroenterol (2012) 0.87
Development and validation of a new patient-reported outcome measure for patients with pressure ulcers: the PU-QOL instrument. Health Qual Life Outcomes (2013) 0.87
Patient-reported outcomes are changing the landscape in oncology care: challenges and opportunities for payers. Am Health Drug Benefits (2013) 0.87
Development of a provisional model to improve transitional care for female adolescents with a rare genital malformation as an example for orphan diseases. Biomed Res Int (2014) 0.87
Scope of symptoms and self-management strategies for chemotherapy-induced peripheral neuropathy in breast cancer patients. Support Care Cancer (2012) 0.86
Childhood esotropia: child and parent concerns. J AAPOS (2016) 0.86
Assessing patient report of function: content validity of the Functional Performance Inventory-Short Form (FPI-SF) in patients with chronic obstructive pulmonary disease (COPD). Int J Chron Obstruct Pulmon Dis (2012) 0.84
Capturing the patient's experience: using qualitative methods to develop a measure of patient-reported symptom burden: an example from ovarian cancer. J Pain Symptom Manage (2013) 0.84
Spanish cultural adaptation and validation of the shoulder pain and disability index, and the oxford shoulder score after breast cancer surgery. Health Qual Life Outcomes (2015) 0.81
Qualitative Research on Fatigue Associated with Depression: Content Validity of the Fatigue Associated with Depression Questionnaire (FAsD-V2). Patient (2015) 0.81
Patient-reported outcome instruments used to assess pain and functioning in studies of bisphosphonate treatment for bone metastases. Support Care Cancer (2012) 0.81
Is the Give Youth a Voice questionnaire an appropriate measure of teen-centred care in paediatric oncology: a Rasch measurement theory analysis. Health Expect (2013) 0.80
Extending the use of PROMs in the NHS--using the Oxford Knee Score in patients undergoing non-operative management for knee osteoarthritis: a validation study. BMJ Open (2013) 0.80
Measuring decisional control preferences in men newly diagnosed with prostate cancer. J Psychosoc Oncol (2011) 0.79
Patient-Reported Outcome Instruments for Physical Symptoms Among Patients Receiving Maintenance Dialysis: A Systematic Review. Am J Kidney Dis (2015) 0.79
Systematic review of measurement properties of patient-reported outcome measures used in patients undergoing hip and knee arthroplasty. Patient Relat Outcome Meas (2016) 0.77
Translation and cultural adaptation of the Illness Invalidation Inventory for use in Sweden. BMC Psychol (2014) 0.77
A qualitative examination of the content validity of the EQ-5D-5L in patients with type 2 diabetes. Health Qual Life Outcomes (2015) 0.77
Qualitative and quantitative validation of the FACIT-fatigue scale in iron deficiency anemia. Health Qual Life Outcomes (2015) 0.77
Content Validity of the Lee Chronic Graft-versus-Host Disease Symptom Scale as Assessed by Cognitive Interviews. Biol Blood Marrow Transplant (2016) 0.76
Qualitative modification and development of patient- and caregiver-reported outcome measures for iron chelation therapy. Health Qual Life Outcomes (2017) 0.75
Detecting When "Quality of Life" Has Been "Enhanced": Estimating Change in Quality of Life Ratings. Open J Philos (2013) 0.75
The menstrual bleeding questionnaire: development and validation of a comprehensive patient-reported outcome instrument for heavy menstrual bleeding. BJOG (2015) 0.75
Development and Content Validity of the Statin Experience Assessment Questionnaire (SEAQ)©. Patient (2016) 0.75
Using cognitive pre-testing methods in the development of a new evidenced-based pressure ulcer risk assessment instrument. BMC Med Res Methodol (2016) 0.75
Measuring symptoms as a critical component of drug development and evaluation in hematological diseases. Clin Investig (Lond) (2013) 0.75
Bayesian Model Assessment in Joint Modeling of Longitudinal and Survival Data with Applications to Cancer Clinical Trials. J Comput Graph Stat (2017) 0.75
The suitability of the GERDyzer instrument in pH-test-proven laryngopharyngeal reflux patients. Medicine (Baltimore) (2016) 0.75
Success in Spine Care: The Proof Is in the Measurements, Part III. Global Spine J (2016) 0.75
Engaging Patients as Partners in Developing Patient-Reported Outcome Measures in Cancer-A Review of the Literature. Support Care Cancer (2016) 0.75
Results of a Qualitative Study to Develop a Patient Reported Outcome Measure for Patients with 4 Subtypes of Soft Tissue Sarcoma. Sarcoma (2017) 0.75
Cross-cultural adaptation, content validation, and reliability of the Nigerian Composite Lifestyle CVD Risk Factors Questionnaire for adolescents among Yoruba rural adolescents in Nigeria. Malawi Med J (2017) 0.75
Do we have the right PROMs for measuring outcomes in lumbar spinal surgery? Eur Spine J (2017) 0.75
Symptoms and Impacts in Non-Metastatic Castration-Resistant Prostate Cancer: Qualitative Study Findings. Patient (2017) 0.75
The PU-PROM: A patient-reported outcome measure for peptic ulcer disease. Health Expect (2017) 0.75
Bilateral childhood visual impairment: child and parent concerns. J AAPOS (2017) 0.75
Assessing health status and quality-of-life instruments: attributes and review criteria. Qual Life Res (2002) 9.99
The COSMIN study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes. J Clin Epidemiol (2010) 6.61
The COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: an international Delphi study. Qual Life Res (2010) 6.09
The COSMIN checklist for evaluating the methodological quality of studies on measurement properties: a clarification of its content. BMC Med Res Methodol (2010) 4.10
Family satisfaction with family conferences about end-of-life care in the intensive care unit: increased proportion of family speech is associated with increased satisfaction. Crit Care Med (2004) 3.18
The Rapid Assessment of Physical Activity (RAPA) among older adults. Prev Chronic Dis (2006) 3.12
Using real-world data for coverage and payment decisions: the ISPOR Real-World Data Task Force report. Value Health (2007) 3.05
Assessment of health-related quality of life in children: a review of conceptual, methodological, and regulatory issues. Value Health (2004) 2.99
The use of patient-reported outcomes instruments in registered clinical trials: evidence from ClinicalTrials.gov. Contemp Clin Trials (2009) 2.88
Measuring treatment impact: a review of patient-reported outcomes and other efficacy endpoints in approved product labels. Control Clin Trials (2004) 2.66
Estimating clinically significant differences in quality of life outcomes. Qual Life Res (2005) 2.55
Assessment of community functioning in people with schizophrenia and other severe mental illnesses: a white paper based on an NIMH-sponsored workshop. Schizophr Bull (2006) 2.53
A measure of the quality of dying and death. Initial validation using after-death interviews with family members. J Pain Symptom Manage (2002) 2.33
Barriers and facilitators to end-of-life care communication for patients with COPD. Chest (2005) 2.23
Dissatisfaction with medical services among Medicare beneficiaries with disabilities. Arch Phys Med Rehabil (2002) 1.99
Studying communication about end-of-life care during the ICU family conference: development of a framework. J Crit Care (2002) 1.90
Pediatric patient-reported outcome instruments for research to support medical product labeling: report of the ISPOR PRO good research practices for the assessment of children and adolescents task force. Value Health (2013) 1.87
Tranexamic acid treatment for heavy menstrual bleeding: a randomized controlled trial. Obstet Gynecol (2010) 1.85
Evaluation of the methodological quality of systematic reviews of health status measurement instruments. Qual Life Res (2009) 1.82
Premature ejaculation: results from a five-country European observational study. Eur Urol (2007) 1.79
Association of depression and life-sustaining treatment preferences in patients with COPD. Chest (2005) 1.77
The German version of the Oral Health Impact Profile--translation and psychometric properties. Eur J Oral Sci (2002) 1.76
A structured review of randomized controlled trials of weight loss showed little improvement in health-related quality of life. J Clin Epidemiol (2005) 1.71
Optimal recall periods for patient-reported outcomes: challenges and potential solutions. Curr Med Res Opin (2009) 1.70
The mathematical relationship among different forms of responsiveness coefficients. Qual Life Res (2007) 1.53
Quality of dying and death in two medical ICUs: perceptions of family and clinicians. Chest (2005) 1.53
Prevalence of secondary conditions among people with disabilities. Am J Public Health (2004) 1.52
Longitudinal analysis of sexual function reported by men in the Prostate Cancer Prevention Trial. J Natl Cancer Inst (2007) 1.52
Inter-rater agreement and reliability of the COSMIN (COnsensus-based Standards for the selection of health status Measurement Instruments) checklist. BMC Med Res Methodol (2010) 1.50
Adolescent quality of life, part I: conceptual and measurement model. J Adolesc (2002) 1.48
Characterization of health related quality of life (HRQOL) for patients with functional bowel disorder (FBD) and its response to treatment. Am J Gastroenterol (2007) 1.44
Trajectories of health for older adults over time: accounting fully for death. Ann Intern Med (2003) 1.44
What do we know about quality of life in dementia? A review of the emerging evidence on the predictive and explanatory value of disease specific measures of health related quality of life in people with dementia. Int J Geriatr Psychiatry (2009) 1.43
Assessing meaningful change in quality of life over time: a users' guide for clinicians. Mayo Clin Proc (2002) 1.43
Managed care and primary physician satisfaction. J Am Board Fam Pract (2003) 1.31
Depressive symptoms and mortality in a prospective study of 2,558 older adults. Am J Geriatr Psychiatry (2002) 1.31
Validation of electronic data capture of the Irritable Bowel Syndrome--Quality of Life Measure, the Work Productivity and Activity Impairment Questionnaire for Irritable Bowel Syndrome and the EuroQol. Value Health (2006) 1.29
A model for incorporating patient and stakeholder voices in a learning health care network: Washington State's Comparative Effectiveness Research Translation Network. J Clin Epidemiol (2013) 1.28
The role of technical advances in the adoption and integration of patient-reported outcomes in clinical care. Med Care (2015) 1.28
Managed care, access to mental health specialists, and outcomes among primary care patients with depressive symptoms. J Gen Intern Med (2002) 1.27
Methods for incorporating death into health-related variables in longitudinal studies. J Clin Epidemiol (2005) 1.26
Validation of the EQ-5D in a general population sample in urban China. Qual Life Res (2011) 1.25
Managed care and the US health care system a social exchange perspective. Soc Sci Med (2002) 1.24
Health behaviors of employed and insured adults in the United States, 2004-2005. Am J Health Promot (2010) 1.21
Managed care, physician job satisfaction, and the quality of primary care. J Gen Intern Med (2005) 1.21
Quality of life of women with urinary incontinence: cross-cultural performance of 15 language versions of the I-QOL. Qual Life Res (2005) 1.19
Quality of life at the end of life. Health Qual Life Outcomes (2007) 1.14
Effects of an oral growth hormone secretagogue in older adults. J Clin Endocrinol Metab (2009) 1.13
Pain and health-related quality of life in patients with advanced solid tumours and bone metastases: integrated results from three randomized, double-blind studies of denosumab and zoledronic acid. Support Care Cancer (2013) 1.12
The psychological burden of premature ejaculation. J Urol (2007) 1.11
Measurement properties of the Medical Outcomes Study Sleep Scale in patients with fibromyalgia. Sleep Med (2009) 1.11
Toward youth self-report of health and quality of life in population monitoring. Ambul Pediatr (2004) 1.10
Does adherence make a difference? Results from a community-based aquatic exercise program. Nurs Res (2002) 1.10
Depression and health-related quality of life. J Nerv Ment Dis (2002) 1.10
Stakeholder perspectives on implementing the National Cancer Institute's patient-reported outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE). Transl Behav Med (2011) 1.07
Synchrony of change in depressive symptoms, health status, and quality of life in persons with clinical depression. Health Qual Life Outcomes (2006) 1.07
A review of selected patient-generated outcome measures and their application in clinical trials. Value Health (2003) 1.07
Patient-reported outcomes in meta-analyses-part 2: methods for improving interpretability for decision-makers. Health Qual Life Outcomes (2013) 1.06
Correspondence between patients' preferences and surrogates' understandings for dying and death. J Pain Symptom Manage (2005) 1.05
Psychometric properties of a single-item scale to assess sleep quality among individuals with fibromyalgia. Health Qual Life Outcomes (2009) 1.03
The establishment of the GENEQOL consortium to investigate the genetic disposition of patient-reported quality-of-life outcomes. Twin Res Hum Genet (2009) 1.03
Indications, labeling, and outcomes assessment for drugs aimed at improving functional status in older persons: a conversation between aging researchers and FDA regulators. J Gerontol A Biol Sci Med Sci (2009) 0.99
Pain outcomes in patients with advanced breast cancer and bone metastases: results from a randomized, double-blind study of denosumab and zoledronic acid. Cancer (2012) 0.99
Dietary and physical activity behaviours related to obesity-specific quality of life and work productivity: baseline results from a worksite trial. Br J Nutr (2011) 0.98
Quality of life of adolescent males with attention-deficit hyperactivity disorder. J Atten Disord (2004) 0.95
Might massage or guided meditation provide "means to a better end"? Primary outcomes from an efficacy trial with patients at the end of life. J Palliat Care (2009) 0.95
Shared priorities for the end-of-life period. J Pain Symptom Manage (2008) 0.95
Perceived control over ejaculation is central to treatment benefit in men with premature ejaculation: results from phase III trials with dapoxetine. BJU Int (2008) 0.95
Minimal clinically important differences in Incontinence Quality-of-Life scores in stress urinary incontinence. Urology (2006) 0.94
Longitudinal change in positive affect in community-dwelling older persons. J Am Geriatr Soc (2006) 0.93
Daily process methodology for measuring earlier antidepressant response. Contemp Clin Trials (2008) 0.92
Evaluating CAM treatment at the end of life: a review of clinical trials for massage and meditation. Complement Ther Med (2006) 0.92
Comparison of 7-day recall and daily diary reports of COPD symptoms and impacts. Value Health (2012) 0.91
Stigma experiences in youth with facial differences: a multi-site study of adolescents and their mothers. Orthod Craniofac Res (2007) 0.90
Physical functional performance in persons using a manual wheelchair. J Orthop Sports Phys Ther (2002) 0.90
Beyond intuition: patient fever symptom experience. J Pain Symptom Manage (2013) 0.90
Estimating a meaningful reduction in menstrual blood loss for women with heavy menstrual bleeding. Curr Med Res Opin (2010) 0.90
Interpreting clinical trial results of patient-perceived onset of effect in asthma: methods and results of a Delphi panel. Curr Med Res Opin (2009) 0.89
The Maine-Seattle back questionnaire: a 12-item disability questionnaire for evaluating patients with lumbar sciatica or stenosis: results of a derivation and validation cohort analysis. Spine (Phila Pa 1976) (2003) 0.89
Onset of effect of budesonide and formoterol administered via one pressurized metered-dose inhaler in patients with asthma previously treated with inhaled corticosteroids. Ann Allergy Asthma Immunol (2008) 0.88
Measurement properties of a multicultural weight-specific quality-of-life instrument for children and adolescents. Qual Life Res (2010) 0.88
Quality of life: how do adolescents with facial differences compare with other adolescents? Cleft Palate Craniofac J (2005) 0.88
Measuring functional performance in patients with COPD: a discussion of patient-reported outcome measures. Curr Med Res Opin (2007) 0.88
Evaluation of the Irritable Bowel Syndrome Quality of Life (IBS-QOL) questionnaire in diarrheal-predominant irritable bowel syndrome patients. Health Qual Life Outcomes (2013) 0.88
Comparison of 7-day and repeated 24-hour recall of symptoms of cystic fibrosis. J Cyst Fibros (2010) 0.87
Approaches to craniofacial-specific quality of life assessment in adolescents. Cleft Palate Craniofac J (2005) 0.87
Quality of life of adolescents with perceived disabilities. J Pediatr Psychol (2003) 0.87
A concept taxonomy and an instrument hierarchy: tools for establishing and evaluating the conceptual framework of a patient-reported outcome (PRO) instrument as applied to product labeling claims. Value Health (2009) 0.87
Feasibility of using pedometers to measure daily step counts in cystic fibrosis and an assessment of its responsiveness to changes in health state. J Cyst Fibros (2012) 0.87
Community-based aquatic exercise and quality of life in persons with osteoarthritis. Med Sci Sports Exerc (2010) 0.86
Menorrhagia Impact Questionnaire: assessing the influence of heavy menstrual bleeding on quality of life. Curr Med Res Opin (2010) 0.86
Accounting for deaths in longitudinal studies using the SF-36: the performance of the Physical Component Scale of the Short Form 36-item health survey and the PCTD. Med Care (2003) 0.86
Managed care, access to specialists, and outcomes among primary care patients with pain. Health Serv Res (2003) 0.86
A collaborative model for endpoint development for acute bacterial skin and skin structure infections and community-acquired bacterial pneumonia. Clin Infect Dis (2012) 0.86
Understanding the decision-making process for health promotion programming at small to midsized businesses. Health Promot Pract (2009) 0.86
Opportunities and challenges to improving end-of-life care for seriously ill elderly patients: a qualitative study of generalist physicians. J Palliat Med (2005) 0.85