Published in J Pediatr Hematol Oncol on March 01, 2015
Health-related quality of life in children with sickle cell anemia: impact of blood transfusion therapy. Am J Hematol (2015) 0.79
Responsiveness of PROMIS(®) Pediatric Measures to Hospitalizations for Sickle Pain and Subsequent Recovery. Pediatr Blood Cancer (2016) 0.75
PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care (2001) 18.55
The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr (2003) 8.61
Health-related quality of life of severely obese children and adolescents. JAMA (2003) 6.90
The PedsQL in pediatric cancer: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer (2002) 5.30
Factor analysis, causal indicators and quality of life. Qual Life Res (1997) 2.25
Interpreting the results of patient reported outcome measures in clinical trials: the clinician's perspective. Health Qual Life Outcomes (2006) 1.64
The performance of the PedsQL generic core scales in children with sickle cell disease. J Pediatr Hematol Oncol (2008) 1.42
Peer relationships and emotional well-being of children with sickle cell disease: a controlled replication. Child Neuropsychol (2007) 1.11
How can quality of life researchers make their work more useful to health workers and their patients? Qual Life Res (2007) 1.09
Health-related quality of life in sickle cell disease: past, present, and future. Pediatr Blood Cancer (2012) 1.08
PedsQL™ sickle cell disease module: feasibility, reliability, and validity. Pediatr Blood Cancer (2013) 1.00
Health-related quality of life in sickle cell disease. Pediatr Blood Cancer (2008) 0.97
The clinical utility of health-related quality of life assessment in pediatric cardiology outpatient practice. Congenit Heart Dis (2012) 0.92
Symptoms and quality of life indicators among children with chronic medical conditions. Disabil Health J (2013) 0.80
Health-related quality of life of severely obese children and adolescents. JAMA (2003) 6.90
Acute care utilization and rehospitalizations for sickle cell disease. JAMA (2010) 3.82
Controlled trial of transfusions for silent cerebral infarcts in sickle cell anemia. N Engl J Med (2014) 3.25
Using problem-solving skills training to reduce negative affectivity in mothers of children with newly diagnosed cancer: report of a multisite randomized trial. J Consult Clin Psychol (2005) 3.04
Cognitive interviewing methodology in the development of a pediatric item bank: a patient reported outcomes measurement information system (PROMIS) study. Health Qual Life Outcomes (2009) 2.59
Practical issues in the application of item response theory: a demonstration using items from the pediatric quality of life inventory (PedsQL) 4.0 generic core scales. Med Care (2007) 2.45
The PedsQL: reliability and validity of the short-form generic core scales and Asthma Module. Med Care (2005) 2.38
Profile of daily life in children with brain tumors: an assessment of health-related quality of life. J Clin Oncol (2005) 2.26
An item response analysis of the pediatric PROMIS anxiety and depressive symptoms scales. Qual Life Res (2010) 2.25
Construction of the eight-item patient-reported outcomes measurement information system pediatric physical function scales: built using item response theory. J Clin Epidemiol (2011) 2.16
The number of people with sickle-cell disease in the United States: national and state estimates. Am J Hematol (2010) 2.15
Silent cerebral infarcts occur despite regular blood transfusion therapy after first strokes in children with sickle cell disease. Blood (2010) 2.15
The use of focus groups in the development of the PROMIS pediatrics item bank. Qual Life Res (2008) 2.07
Health-related quality of life and symptom reporting: similarities and differences between children and their parents. Eur J Pediatr (2013) 1.98
Vaso-occlusive painful events in sickle cell disease: impact on child well-being. Pediatr Blood Cancer (2010) 1.98
Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey. Qual Life Res (2010) 1.96
Quality of life of children and adolescents from São Paulo: reliability and validity of the Brazilian version of the Pediatric Quality of Life Inventory version 4.0 Generic Core Scales. J Pediatr (Rio J) (2008) 1.87
Construction of the Pediatric Asthma Impact Scale (PAIS) for the Patient-Reported Outcomes Measurement Information System (PROMIS). J Asthma (2010) 1.82
Trajectories of adjustment in mothers of children with newly diagnosed cancer: a natural history investigation. J Pediatr Psychol (2007) 1.72
Quality of life in children with heart disease as perceived by children and parents. Pediatrics (2008) 1.72
Parents' perceptions of pediatric primary care quality: effects of race/ethnicity, language, and access. Health Serv Res (2003) 1.58
Parent proxy-reported health-related quality of life and fatigue in pediatric patients diagnosed with brain tumors and acute lymphoblastic leukemia. Cancer (2004) 1.58
Pediatric end stage renal disease health-related quality of life differs by modality: a PedsQL ESRD analysis. Pediatr Nephrol (2009) 1.51
Health-related quality of life as a predictor of pediatric healthcare costs: a two-year prospective cohort analysis. Health Qual Life Outcomes (2004) 1.48
Problem-solving skills training for mothers of children with newly diagnosed cancer: a randomized trial. J Dev Behav Pediatr (2002) 1.48
Cross-sectional analysis of health-related quality of life in pediatric liver transplant recipients. J Pediatr (2009) 1.47
Health-related quality of life in pediatric patients with ESRD. Pediatr Nephrol (2006) 1.44
PROMIS Pediatric Anger Scale: an item response theory analysis. Qual Life Res (2011) 1.39
Patients with sickle cell disease have increased sensitivity to cold and heat. Am J Hematol (2012) 1.38
The Seattle Pediatric Palliative Care Project: effects on family satisfaction and health-related quality of life. J Palliat Med (2006) 1.38
The PedsQL Brain Tumor Module: initial reliability and validity. Pediatr Blood Cancer (2007) 1.36
Health-related quality of life and depressive symptoms in children with suspected sleep-disordered breathing. Sleep (2004) 1.32
Development of six PROMIS pediatrics proxy-report item banks. Health Qual Life Outcomes (2012) 1.29
Using the PedsQL™ 3.0 asthma module to obtain scores comparable with those of the PROMIS pediatric asthma impact scale (PAIS). Qual Life Res (2011) 1.29
Health-related quality of life in children and adolescents with Duchenne muscular dystrophy. Pediatrics (2012) 1.28
Pathophysiology of stroke in sickle cell disease. Microcirculation (2004) 1.28
Development and psychometric properties of the PROMIS(®) pediatric fatigue item banks. Qual Life Res (2013) 1.27
Hydroxyurea in children with sickle cell disease: practice patterns and barriers to utilization. Am J Hematol (2010) 1.23
Validation of the Korean version of the pediatric quality of life inventory 4.0 (PedsQL) generic core scales in school children and adolescents using the Rasch model. Health Qual Life Outcomes (2008) 1.22
Health status of children alive 10 years after pediatric liver transplantation performed in the US and Canada: report of the studies of pediatric liver transplantation experience. J Pediatr (2011) 1.20
Measuring health-related quality of life in children with ESRD: performance of the generic and ESRD-specific instrument of the Pediatric Quality of Life Inventory (PedsQL). Am J Kidney Dis (2008) 1.19
Health-related quality of life in pediatric liver transplant recipients compared with other chronic disease groups. Pediatr Transplant (2010) 1.19
The effects of dyadic strength and coping styles on psychological distress in couples faced with prostate cancer. J Behav Med (2003) 1.18
The PedsQL in pediatric patients with Duchenne muscular dystrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Neuromuscular Module and Generic Core Scales. J Clin Neuromuscul Dis (2010) 1.17
Item response theory detected differential item functioning between healthy and ill children in quality-of-life measures. J Clin Epidemiol (2007) 1.17
The PedsQL in pediatric patients with Spinal Muscular Atrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Generic Core Scales and Neuromuscular Module. Neuromuscul Disord (2009) 1.17
Attitudes regarding fertility preservation in female adolescent cancer patients. J Pediatr Hematol Oncol (2006) 1.16
The pediatric quality of life inventory (PedsQL) family impact module: reliability and validity of the Brazilian version. Health Qual Life Outcomes (2008) 1.13
Measurement properties of the Brazilian version of the Pediatric Quality of Life Inventory (PedsQL) cancer module scale. Health Qual Life Outcomes (2008) 1.11
Costs of recruiting couples to a clinical trial. Contemp Clin Trials (2006) 1.11
Factorial invariance of child self-report across age subgroups: a confirmatory factor analysis of ages 5 to 16 years utilizing the PedsQL 4.0 Generic Core Scales. Value Health (2007) 1.10
Measuring health-related quality of life in Greek children: psychometric properties of the Greek version of the Pediatric Quality of Life Inventory(TM) 4.0 Generic Core Scales. Qual Life Res (2007) 1.10
Parents' reports of barriers to care for children with special health care needs: development and validation of the barriers to care questionnaire. Ambul Pediatr (2004) 1.09
Fatigue and health-related quality of life in pediatric inflammatory bowel disease. Clin Gastroenterol Hepatol (2009) 1.08
The PedsQL Present Functioning Visual Analogue Scales: preliminary reliability and validity. Health Qual Life Outcomes (2006) 1.06
Postdischarge pain, functional limitations and impact on caregivers of children with sickle cell disease treated for painful events. Br J Haematol (2008) 1.04
Reliability, validity, and responsiveness of the pediatric quality of life inventory (PedsQL) generic core scales and asthma symptoms scale in vulnerable children with asthma. J Asthma (2010) 1.04
Factorial invariance of child self-report across healthy and chronic health condition groups: a confirmatory factor analysis utilizing the PedsQLTM 4.0 Generic Core Scales. J Pediatr Psychol (2007) 1.03
PROMIS Pediatric Peer Relationships Scale: development of a peer relationships item bank as part of social health measurement. Health Psychol (2013) 1.03
Problem-solving and distress in prostate cancer patients and their spousal caregivers. Support Care Cancer (2005) 1.03
Crossing the border for health care: access and primary care characteristics for young children of Latino farm workers along the US-Mexico border. Ambul Pediatr (2003) 1.02
PedsQL eosinophilic esophagitis module: feasibility, reliability, and validity. J Pediatr Gastroenterol Nutr (2013) 1.02
The impact of realized access to care on health-related quality of life: a two-year prospective cohort study of children in the California State Children's Health Insurance Program. J Pediatr (2006) 1.02
The Internet is valid and reliable for child-report: an example using the Activities Scale for Kids (ASK) and the Pediatric Quality of Life Inventory (PedsQL). J Clin Epidemiol (2008) 1.02
Hydroxyurea use in sickle cell disease: the battle with low prescription rates, poor patient compliance and fears of toxicities. Expert Rev Hematol (2010) 1.01
PedsQL™ sickle cell disease module: feasibility, reliability, and validity. Pediatr Blood Cancer (2013) 1.00
The in vivo adherence intervention for at risk adolescents with asthma: report of a randomized pilot trial. J Pediatr Psychol (2011) 1.00
Reliability and validity of the Iranian version of the Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales in adolescents. Qual Life Res (2010) 0.99
Report from a multi-institutional randomized clinical trial examining computer-assisted problem-solving skills training for English- and Spanish-speaking mothers of children with newly diagnosed cancer. J Pediatr Psychol (2008) 0.98
Differences in health-related quality of life in children with sickle cell disease receiving hydroxyurea. J Pediatr Hematol Oncol (2011) 0.97
Health-related quality of life in pediatric patients with long-standing pancreatitis. J Pediatr Gastroenterol Nutr (2012) 0.97
Problem-solving skills training for vulnerable families of children with persistent asthma: report of a randomized trial on health-related quality of life outcomes. J Pediatr Psychol (2010) 0.95
Outpatient follow-up and rehospitalizations for sickle cell disease patients. Pediatr Blood Cancer (2011) 0.93
Development of the PedsQL™ Sickle Cell Disease Module items: qualitative methods. Qual Life Res (2011) 0.93
Dyadic concordance among prostate cancer patients and their partners and health-related quality of life: does it matter? Psychol Health (2011) 0.93
Initial validation of the Argentinean Spanish version of the PedsQL 4.0 Generic Core Scales in children and adolescents with chronic diseases: acceptability and comprehensibility in low-income settings. Health Qual Life Outcomes (2008) 0.92
The clinical utility of health-related quality of life assessment in pediatric cardiology outpatient practice. Congenit Heart Dis (2012) 0.92
When children with sickle-cell disease become adults: lack of outpatient care leads to increased use of the emergency department. Am J Hematol (2011) 0.92
Barriers to care questionnaire: reliability, validity, and responsiveness to change among parents of children with asthma. Acad Pediatr (2009) 0.92
Measuring health-related quality of life in Hungarian children with heart disease: psychometric properties of the Hungarian version of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales and the Cardiac Module. Health Qual Life Outcomes (2010) 0.92
Development of a validated patient-reported symptom metric for pediatric eosinophilic esophagitis: qualitative methods. BMC Gastroenterol (2011) 0.91
Pain, fatigue, and school functioning in children with cerebral palsy: a path-analytic model. J Pediatr Psychol (2006) 0.91
The effect of magnesium on length of stay for pediatric sickle cell pain crisis. Acad Emerg Med (2004) 0.90
Reliability and validity of the Pediatric Quality of Life Inventory (PedsQL) Short Form 15 Generic Core Scales in Japan. Qual Life Res (2007) 0.90
Intravenous magnesium for pediatric sickle cell vaso-occlusive crisis: methodological issues of a randomized controlled trial. Pediatr Blood Cancer (2014) 0.90
Fatigued breast cancer survivors: the role of sleep quality, depressed mood, stage and age. Psychol Health (2009) 0.90
Validation of Persian Version of PedsQL™ 4.0™ Generic Core Scales in Toddlers and Children. Int J Prev Med (2012) 0.89
Quantifying the relationship among hospital design, satisfaction, and psychosocial functioning in a pediatric hematology-oncology inpatient unit. HERD (2011) 0.89
PedsQL™ Multidimensional Fatigue Scale in sickle cell disease: feasibility, reliability, and validity. Pediatr Blood Cancer (2013) 0.88
Patient-reported Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales in pediatric patients with attention-deficit/hyperactivity disorder and comorbid psychiatric disorders: feasibility, reliability, and validity. Value Health (2011) 0.88
The relationship between health-related quality of life, pain, and coping strategies in juvenile arthritis--a one year prospective study. Qual Life Res (2005) 0.88
Development of the Pediatric Quality of Life Inventory™ Eosinophilic Esophagitis module items: qualitative methods. BMC Gastroenterol (2012) 0.87
The effect of CYP2D6 polymorphisms on the response to pain treatment for pediatric sickle cell pain crisis. J Pediatr (2007) 0.87
Factorial invariance of child self-report across race/ethnicity groups: a multigroup confirmatory factor analysis approach utilizing the PedsQL 4.0 Generic Core Scales. Ann Epidemiol (2009) 0.87
The effect of acute pain crisis on exhaled nitric oxide levels in children with sickle cell disease. Pediatr Blood Cancer (2008) 0.87
A comparative analysis of health-related quality of life and family impact between children with ADHD treated in a general pediatric clinic and a psychiatric clinic utilizing the PedsQL. J Atten Disord (2010) 0.87
Oral health-related quality of life and traumatic dental injuries in Brazilian adolescents. Community Dent Oral Epidemiol (2013) 0.87
Neuropathic pain in patients with sickle cell disease. Pediatr Blood Cancer (2013) 0.87
PROMIS(®) pediatric self-report scales distinguish subgroups of children within and across six common pediatric chronic health conditions. Qual Life Res (2015) 0.87