Development of MijnAVL, an Interactive Portal to Empower Breast and Lung Cancer Survivors: An Iterative, Multi-Stakeholder Approach.

PubWeight™: 0.81‹?›

🔗 View Article (PMC 4319089)

Published in JMIR Res Protoc on January 22, 2015

Authors

Wilma Kuijpers1, Wim G Groen, Hester Sa Oldenburg, Michel Wjm Wouters, Neil K Aaronson, Wim H van Harten

Author Affiliations

1: The Netherlands Cancer Institute, Division of Psychosocial Research and Epidemiology, Amsterdam, Netherlands.

Articles cited by this

Health promotion by social cognitive means. Health Educ Behav (2004) 18.93

Development and testing of a short form of the patient activation measure. Health Serv Res (2005) 8.26

The effects of promoting patient access to medical records: a review. J Am Med Inform Assoc (2003) 6.00

Health-related quality-of-life assessments and patient-physician communication: a randomized controlled trial. JAMA (2002) 5.30

Patient care information systems and health care work: a sociotechnical approach. Int J Med Inform (1999) 4.92

Cancer survivors' adherence to lifestyle behavior recommendations and associations with health-related quality of life: results from the American Cancer Society's SCS-II. J Clin Oncol (2008) 4.60

Information needs of patients with cancer: results from a large study in UK cancer centres. Br J Cancer (2001) 4.33

Physical activity for cancer survivors: meta-analysis of randomised controlled trials. BMJ (2012) 4.19

Patients' experiences when accessing their on-line electronic patient records in primary care. Br J Gen Pract (2004) 3.06

Patient empowerment in theory and practice: polysemy or cacophony? Patient Educ Couns (2006) 2.61

Effectiveness of web-based interventions on patient empowerment: a systematic review and meta-analysis. J Med Internet Res (2010) 2.40

The think aloud method: a guide to user interface design. Int J Med Inform (2004) 2.09

A systematic review of web-based interventions for patient empowerment and physical activity in chronic diseases: relevance for cancer survivors. J Med Internet Res (2013) 1.82

Health-related information needs in a large and diverse sample of adult cancer survivors: implications for cancer care. J Cancer Surviv (2008) 1.76

Nurse and physician perspectives on patients with cancer having online access to their laboratory results. Oncol Nurs Forum (2011) 1.60

Use of health-related quality-of-life assessments in daily clinical oncology nursing practice: a community hospital-based intervention study. Cancer (2008) 1.47

A systematic review of the effects of e-health on chronically ill patients. J Clin Nurs (2011) 1.29

Health systems evaluation of telemedicine: a staged approach. Telemed J (1996) 1.26

The Computer-based Health Evaluation Software (CHES): a software for electronic patient-reported outcome monitoring. BMC Med Inform Decis Mak (2012) 1.20

The anxious wait: assessing the impact of patient accessible EHRs for breast cancer patients. BMC Med Inform Decis Mak (2010) 1.12

Integrating cancer survivors' experiences into UK cancer registries: design and development of the ePOCS system (electronic Patient-reported Outcomes from Cancer Survivors). Br J Cancer (2011) 1.11

Internet interventions to support lifestyle modification for diabetes management: a systematic review of the evidence. J Diabetes Complications (2013) 1.09

Are exercise programs effective for improving health-related quality of life among cancer survivors? A systematic review and meta-analysis. Oncol Nurs Forum (2014) 0.97

Full access to medical records does not modify anxiety in cancer patients: results of a randomized study. Cancer (2011) 0.93

Understanding the support needs of patients accessing test results online. PHRs offer great promise, but support issues must be addressed to ensure appropriate access. J Healthc Inf Manag (2010) 0.82

Adherence to physical activity guidelines among cancer support group participants. Eur J Cancer Care (Engl) (2013) 0.80

Articles by these authors

Health-related quality-of-life assessments and patient-physician communication: a randomized controlled trial. JAMA (2002) 5.30

Health-related quality of life associated with chronic conditions in eight countries: results from the International Quality of Life Assessment (IQOLA) Project. Qual Life Res (2004) 4.33

Treatment of vulvar intraepithelial neoplasia with topical imiquimod. N Engl J Med (2008) 4.33

Use of 70-gene signature to predict prognosis of patients with node-negative breast cancer: a prospective community-based feasibility study (RASTER). Lancet Oncol (2007) 3.32

Physical exercise in cancer patients during and after medical treatment: a systematic review of randomized and controlled clinical trials. J Clin Oncol (2005) 2.71

Responsiveness and minimal important differences for patient reported outcomes. Health Qual Life Outcomes (2006) 2.48

Quality-of-life effects of prophylactic salpingo-oophorectomy versus gynecologic screening among women at increased risk of hereditary ovarian cancer. J Clin Oncol (2005) 2.42

Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations. Qual Life Res (2011) 2.42

Cognitive and radiological effects of radiotherapy in patients with low-grade glioma: long-term follow-up. Lancet Neurol (2009) 2.35

The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease. J Clin Epidemiol (2002) 2.25

Impact of late treatment-related toxicity on quality of life among patients with head and neck cancer treated with radiotherapy. J Clin Oncol (2008) 2.23

Epilepsy in low-grade gliomas: the impact on cognitive function and quality of life. Ann Neurol (2003) 2.00

The development of the EORTC QLQ-C15-PAL: a shortened questionnaire for cancer patients in palliative care. Eur J Cancer (2005) 1.97

ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research. Qual Life Res (2013) 1.96

An international field study of the EORTC QLQ-PR25: a questionnaire for assessing the health-related quality of life of patients with prostate cancer. Eur J Cancer (2008) 1.95

An international validation study of the EORTC brain cancer module (EORTC QLQ-BN20) for assessing health-related quality of life and symptoms in brain cancer patients. Eur J Cancer (2010) 1.84

A systematic review of web-based interventions for patient empowerment and physical activity in chronic diseases: relevance for cancer survivors. J Med Internet Res (2013) 1.82

The Patient Reported Outcomes Following Initial treatment and Long term Evaluation of Survivorship registry: scope, rationale and design of an infrastructure for the study of physical and psychosocial outcomes in cancer survivorship cohorts. Eur J Cancer (2011) 1.69

Efficacy of cognitive behavioral therapy and physical exercise in alleviating treatment-induced menopausal symptoms in patients with breast cancer: results of a randomized, controlled, multicenter trial. J Clin Oncol (2012) 1.68

Effectiveness of behavioral techniques and physical exercise on psychosocial functioning and health-related quality of life in breast cancer patients and survivors--a meta-analysis. Psychooncology (2011) 1.68

Translation procedures for standardised quality of life questionnaires: The European Organisation for Research and Treatment of Cancer (EORTC) approach. Eur J Cancer (2007) 1.62

Comparing higher order models for the EORTC QLQ-C30. Qual Life Res (2011) 1.60

The course of neurocognitive functioning in high-grade glioma patients. Neuro Oncol (2006) 1.55

Methodological quality of patient-reported outcome research was low in complementary and alternative medicine in oncology. J Clin Epidemiol (2006) 1.55

Chemotherapy-induced nausea and vomiting in daily clinical practice: a community hospital-based study. Support Care Cancer (2011) 1.52

Health related quality of life in men with prostate cancer. J Urol (2003) 1.51

Cost-effectiveness of cognitive behavioral therapy and physical exercise for alleviating treatment-induced menopausal symptoms in breast cancer patients. J Cancer Surviv (2014) 1.49

Use of health-related quality-of-life assessments in daily clinical oncology nursing practice: a community hospital-based intervention study. Cancer (2008) 1.47

The impact of hormone replacement therapy on menopausal symptoms in younger high-risk women after prophylactic salpingo-oophorectomy. J Clin Oncol (2006) 1.41

Screening behavior of individuals at high risk for colorectal cancer. Gastroenterology (2005) 1.39

Assessing patient-reported peripheral neuropathy: the reliability and validity of the European Organization for Research and Treatment of Cancer QLQ-CIPN20 Questionnaire. Qual Life Res (2013) 1.33

Use of patient-reported outcomes in clinical practice. Lancet (2009) 1.25

Quality of life and functional status in patients with cancer of the oral cavity and oropharynx: pretreatment values of a prospective study. Eur Arch Otorhinolaryngol (2007) 1.24

Quality of life among long-term non-Hodgkin lymphoma survivors: a population-based study. Cancer (2007) 1.16

Cognitive rehabilitation in patients with gliomas: a randomized, controlled trial. J Clin Oncol (2009) 1.16

Constructive Technology Assessment (CTA) as a tool in coverage with evidence development: the case of the 70-gene prognosis signature for breast cancer diagnostics. Int J Technol Assess Health Care (2009) 1.14

The psychometric and clinical validity of the SWAL-QOL questionnaire in evaluating swallowing problems experienced by patients with oral and oropharyngeal cancer. Oral Oncol (2009) 1.12

The relationship between numbness, tingling, and shooting/burning pain in patients with chemotherapy-induced peripheral neuropathy (CIPN) as measured by the EORTC QLQ-CIPN20 instrument, N06CA. Support Care Cancer (2011) 1.12

Methodology of constructive technology assessment in health care. Int J Technol Assess Health Care (2007) 1.12

A simulation study provided sample size guidance for differential item functioning (DIF) studies using short scales. J Clin Epidemiol (2008) 1.12

International benchmarking of specialty hospitals. A series of case studies on comprehensive cancer centres. BMC Health Serv Res (2010) 1.12

International perspective on health-related quality-of-life research in cancer clinical trials: the European Organisation for Research and Treatment of Cancer experience. J Clin Oncol (2007) 1.11

Differential item functioning (DIF) analyses of health-related quality of life instruments using logistic regression. Health Qual Life Outcomes (2010) 1.11

Changes in physical functioning and quality of life in patients with cancer: response shift and relative evaluation of one's condition. J Clin Epidemiol (2002) 1.11

Quality of life after surgical treatment for oral and oropharyngeal cancer: a prospective longitudinal assessment of patients reconstructed by a microvascular flap. Oral Oncol (2007) 1.10

The case for an international patient-reported outcomes measurement information system (PROMIS®) initiative. Health Qual Life Outcomes (2013) 1.08

Normative data for the EORTC QLQ-C30 and EORTC-sexuality items in the general Dutch population. Eur J Cancer (2010) 1.06

Critical appraisal of translational research models for suitability in performance assessment of cancer centers. Oncologist (2012) 1.04

Conservative interventions for preventing clinically detectable upper-limb lymphoedema in patients who are at risk of developing lymphoedema after breast cancer therapy. Cochrane Database Syst Rev (2015) 1.04

Development of computerised adaptive testing (CAT) for the EORTC QLQ-C30 dimensions - general approach and initial results for physical functioning. Eur J Cancer (2010) 1.02

Obtaining 'fresh' consent for genetic research with biological samples archived 10 years ago. Eur J Cancer (2009) 1.01

Prospective evaluation of health-related quality of life in long-term oral and oropharyngeal cancer survivors and the perceived need for supportive care. Oral Oncol (2013) 1.01

Patient-reported quality of life after stereotactic ablative radiotherapy for early-stage lung cancer. J Thorac Oncol (2012) 1.00

Predictors of prophylactic bilateral salpingo-oophorectomy compared with gynecologic screening use in BRCA1/2 mutation carriers. J Clin Oncol (2007) 1.00

Speech Handicap Index in patients with oral and pharyngeal cancer: better understanding of patients' complaints. Head Neck (2008) 0.99

The relationship between overall quality of life and its subdimensions was influenced by culture: analysis of an international database. J Clin Epidemiol (2008) 0.98

Chromogranin A as an alternative to 5-hydroxyindoleacetic acid in the evaluation of symptoms during treatment of patients with neuroendocrine Tumors. Neuroendocrinology (2008) 0.98

Applying quality-of-life data formally and systematically into clinical practice. Mayo Clin Proc (2007) 0.98

Effectiveness of the ACA (Availability, Current issues and Anticipation) training programme on GP-patient communication in palliative care; a controlled trial. BMC Fam Pract (2013) 0.98

Treatment of vulvar intraepithelial neoplasia with topical imiquimod: seven years median follow-up of a randomized clinical trial. Gynecol Oncol (2011) 0.98

Psychological distress and use of psychosocial support in familial adenomatous polyposis. Psychooncology (2010) 0.98

Successfully improving physical activity behavior after rehabilitation. Am J Health Promot (2007) 0.96

Health-related quality of life of long-term high-grade glioma survivors. Neuro Oncol (2008) 0.96

Hand-held dynamometry in patients with haematological malignancies: measurement error in the clinical assessment of knee extension strength. BMC Musculoskelet Disord (2009) 0.96

Effectiveness of multidimensional cancer survivor rehabilitation and cost-effectiveness of cancer rehabilitation in general: a systematic review. Oncologist (2012) 0.95

Genetic testing in Li-Fraumeni syndrome: uptake and psychosocial consequences. J Clin Oncol (2010) 0.95

Breast cancer genetic counseling after diagnosis but before treatment: a pilot study on treatment consequences and psychological impact. Patient Educ Couns (2012) 0.94

Can patient-reported outcome measures identify cancer patients' most bothersome issues? J Clin Oncol (2011) 0.94

Methodological challenges in quality of life research among Turkish and Moroccan ethnic minority cancer patients: translation, recruitment and ethical issues. Ethn Health (2009) 0.94

Translation and validation of the SF-36 Health Survey for use among Turkish and Moroccan ethnic minority cancer patients in The Netherlands. Eur J Cancer (2006) 0.94

Attitudes toward genetic testing in childhood and reproductive decision-making for familial adenomatous polyposis. Eur J Hum Genet (2009) 0.94

Quality of life in good prognosis patients with metastatic germ cell cancer: a prospective study of the European Organization for Research and Treatment of Cancer Genitourinary Group/Medical Research Council Testicular Cancer Study Group (30941/TE20). J Clin Oncol (2003) 0.94

Health-related quality of life of significant others of patients with malignant CNS versus non-CNS tumors: a comparative study. J Neurooncol (2013) 0.93

Prospective study of long-term impact of adjuvant high-dose and conventional-dose chemotherapy on health-related quality of life. J Clin Oncol (2007) 0.93

Colorectal cancer in the family: psychosocial distress and social issues in the years following genetic counselling. Hered Cancer Clin Pract (2007) 0.93

Behavioral and psychosocial effects of rapid genetic counseling and testing in newly diagnosed breast cancer patients: design of a multicenter randomized clinical trial. BMC Cancer (2011) 0.92

Interventions for cognitive deficits in adults with brain tumours. Lancet Neurol (2008) 0.92

Psychosocial issues in cancer genetics--current status and future directions. Acta Oncol (2003) 0.92

Scenario drafting to anticipate future developments in technology assessment. BMC Res Notes (2012) 0.92

Cross-cultural development of an item list for computer-adaptive testing of fatigue in oncological patients. Health Qual Life Outcomes (2011) 0.91

The EORTC computer-adaptive tests measuring physical functioning and fatigue exhibited high levels of measurement precision and efficiency. J Clin Epidemiol (2013) 0.91

Immune function and adjustment style: do they predict survival in breast cancer? Psychooncology (2004) 0.91

Specific psychosocial issues of individuals undergoing genetic counseling for cancer - a literature review. J Genet Couns (2013) 0.90

Cognitive behavioral therapy and physical exercise for climacteric symptoms in breast cancer patients experiencing treatment-induced menopause: design of a multicenter trial. BMC Womens Health (2009) 0.90

Breast cancer patients on adjuvant chemotherapy report a wide range of problems not identified by health-care staff. Breast Cancer Res Treat (2006) 0.90

Development of computerized adaptive testing (CAT) for the EORTC QLQ-C30 physical functioning dimension. Qual Life Res (2010) 0.90

Differential item functioning (DIF) in the EORTC QLQ-C30: a comparison of baseline, on-treatment and off-treatment data. Qual Life Res (2009) 0.90

Translation and validation of the EORTC brain cancer module (EORTC QLQ-BN20) for use in Iran. Health Qual Life Outcomes (2012) 0.89

Testing the measurement equivalence of paper and interactive voice response system versions of the EORTC QLQ-C30. Qual Life Res (2013) 0.89

The influence of proxy perspective on patient-proxy agreement in the evaluation of health-related quality of life: an empirical study. Med Care (2008) 0.88

Quality of life as predictor of survival: a prospective study on patients treated with combined surgery and radiotherapy for advanced oral and oropharyngeal cancer. Radiother Oncol (2010) 0.87

Physical activity interventions to improve daily walking activity in cancer survivors. BMC Cancer (2010) 0.87

Alpe d'HuZes cancer rehabilitation (A-CaRe) research: four randomized controlled exercise trials and economic evaluations in cancer patients and survivors. Int J Behav Med (2012) 0.87

Health-related quality of life in long-term esophageal cancer survivors after potentially curative treatment. J Thorac Cardiovasc Surg (2010) 0.86

A review on the relation between simulation and improvement in hospitals. BMC Med Inform Decis Mak (2012) 0.86

Radiotherapy alone, versus radiotherapy with amifostine 3 times weekly, versus radiotherapy with amifostine 5 times weekly: A prospective randomized study in squamous cell head and neck cancer. Cancer (2006) 0.86