Published in BMC Palliat Care on May 02, 2015
ERANet-LAC CODE: International Care Of the Dying Evaluation | NCT03566732
Perceptions by family members of the dying experience of older and seriously ill patients. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Ann Intern Med (1997) 6.55
A measure of the quality of dying and death. Initial validation using after-death interviews with family members. J Pain Symptom Manage (2002) 2.33
Talking with terminally ill patients and their caregivers about death, dying, and bereavement: is it stressful? Is it helpful? Arch Intern Med (2004) 2.07
Challenges in palliative care research; recruitment, attrition and compliance: experience from a randomized controlled trial. Palliat Med (1999) 1.64
Defining the patient population: one of the problems for palliative care research. Palliat Med (2006) 1.21
Surveys to assess satisfaction with end-of-life care: does timing matter? J Pain Symptom Manage (2003) 1.21
Quality of dying in the ICU: ratings by family members. Chest (2005) 1.16
Validation and clinical application of the german version of the palliative care outcome scale. J Pain Symptom Manage (2005) 1.14
What do palliative care patients and their relatives think about research in palliative care?-a systematic review. Support Care Cancer (2009) 1.13
Burden and benefit of psychosocial research at the end of life. J Palliat Med (2008) 1.12
"I will do it if it will help others:" motivations among patients taking part in qualitative studies in palliative care. J Pain Symptom Manage (2008) 1.01
[Validation of the new version of the minimal documentation system (MIDOS) for patients in palliative care : the German version of the edmonton symptom assessment scale (ESAS)]. Schmerz (2010) 1.00
Patient, caregiver, health professional and researcher views and experiences of participating in research at the end of life: a critical interpretive synthesis of the literature. BMC Med Res Methodol (2012) 1.00
MORECare research methods guidance development: recommendations for ethical issues in palliative and end-of-life care research. Palliat Med (2013) 0.98
What is the risk of distress in palliative care survey research? J Pain Symptom Manage (2004) 0.95
Participant recruitment in sensitive surveys: a comparative trial of 'opt in' versus 'opt out' approaches. BMC Med Res Methodol (2013) 0.94
Do research interviews cause distress or interfere in management? Experience from a study of cancer patients. J R Coll Physicians Lond (1999) 0.89
NHPCO Task Force Statement on the Ethics of Hospice Participation in Research. J Palliat Med (2001) 0.88
The experience of research participation for family caregivers of palliative care cancer patients. Int J Palliat Nurs (2003) 0.86
The ethics and practicalities of consent in palliative care research: an overview. Int J Palliat Nurs (2001) 0.84
Methodological challenges in supportive and palliative care cancer research. Semin Oncol (2011) 0.79
Research with families in palliative care: conceptual and methodological challenges. Eur J Cancer Care (Engl) (1998) 0.78