Assessment of Quality of Life in Young Patients with Single Ventricle after the Fontan Operation.

PubWeight™: 0.78‹?›

🔗 View Article (PMID 26685073)

Published in J Pediatr on December 10, 2015

Authors

Karen Uzark1, Victor Zak2, Peter Shrader2, Brian W McCrindle3, Elizabeth Radojewski3, James W Varni4, Kaitlyn Daniels5, Jill Handisides6, Kevin D Hill7, Linda M Lambert8, Renee Margossian6, Victoria L Pemberton9, Wyman W Lai10, Andrew M Atz11, Pediatric Heart Network Investigators

Author Affiliations

1: University of Michigan Mott Children's Hospital, Ann Arbor, MI. Electronic address: karenu@med.umich.edu.
2: New England Research Institutes, Watertown, MA.
3: University of Toronto Hospital for Sick Children, Toronto, Ontario, Canada.
4: Texas A & M University, College Station, TX.
5: Children's Hospital of Philadelphia, Philadelphia, PA.
6: Boston Children's Hospital, Boston, MA.
7: Duke University Medical Center, Durham, NC.
8: Primary Children's Hospital, Salt Lake City, UT.
9: National Heart, Lung, and Blood Institute, Bethesda, MD.
10: Columbia University Medical Center, New York, NY.
11: Medical University of South Carolina, Charleston, SC.

Associated clinical trials:

Relationship Between Functional Health Status and Ventricular Performance After Fontan--Pediatric Heart Network | NCT00132782

Articles cited by this

The MOS 36-Item Short-Form Health Survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Med Care (1993) 27.05

PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care (2001) 18.55

SF-36 health survey update. Spine (Phila Pa 1976) (2000) 12.41

The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr (2003) 8.61

Contemporary outcomes after the Fontan procedure: a Pediatric Heart Network multicenter study. J Am Coll Cardiol (2008) 2.91

Impact of oral sildenafil on exercise performance in children and young adults after the fontan operation: a randomized, double-blind, placebo-controlled, crossover trial. Circulation (2011) 2.19

Effect of sildenafil on haemodynamic response to exercise and exercise capacity in Fontan patients. Eur Heart J (2008) 1.99

Quality of life and perceived health status in surviving adults with univentricular heart. Heart (2001) 1.84

Relationship of patient and medical characteristics to health status in children and adolescents after the Fontan procedure. Circulation (2006) 1.78

Quality of life in children with heart disease as perceived by children and parents. Pediatrics (2008) 1.72

Psychological and cognitive functioning in children and adolescents with congenital heart disease: a meta-analysis. J Pediatr Psychol (2006) 1.56

The pediatric quality of life inventory: measuring pediatric health-related quality of life from the perspective of children and their parents. Pediatr Clin North Am (2009) 1.54

Measuring health-related quality of life in adolescents and young adults: Swedish normative data for the SF-36 and the HADS, and the influence of age, gender, and method of administration. Health Qual Life Outcomes (2006) 1.44

Long-term outcome and quality of life in adult patients after the Fontan operation. Am J Cardiol (2004) 1.33

Depression and anxiety in adult congenital heart disease: predictors and prevalence. Int J Cardiol (2008) 1.32

The PedsQL 4.0 Generic Core Scales Young Adult Version: feasibility, reliability and validity in a university student population. J Health Psychol (2009) 1.29

Quality of life experienced by adolescents and young adults with congenital heart disease. Pediatr Cardiol (2011) 1.06

Parent- versus child-reported functional health status after the Fontan procedure. Pediatrics (2009) 1.05

Impact of cardiac rehabilitation on the exercise function of children with serious congenital heart disease. Pediatrics (2005) 1.05

Determinants of the quality of life of patients with congenital heart disease. Qual Life Res (2005) 1.05

Clinical profile of the adolescent/adult Fontan survivor. Congenit Heart Dis (2011) 1.04

Factors associated with serum brain natriuretic peptide levels after the Fontan procedure. Congenit Heart Dis (2011) 1.01

Laboratory measures of exercise capacity and ventricular characteristics and function are weakly associated with functional health status after Fontan procedure. Circulation (2009) 0.99

Functional health status of adolescents after the Fontan procedure -- comparison with their siblings. Can J Cardiol (2009) 0.98

Are children with congenital cardiac malformations at increased risk of deficits in social cognition? Cardiol Young (2007) 0.97

Caliber of quality-of-life assessments in congenital heart disease: a plea for more conceptual and methodological rigor. Arch Pediatr Adolesc Med (2004) 0.96

Quality of life and cognitive function in Fontan patients, a population-based study. Int J Cardiol (2013) 0.91

Quality of life, health status, and depression: comparison between adolescents and adults after the Fontan procedure with healthy counterparts. J Cardiovasc Nurs (2012) 0.90

Linking quality-of-life measures using the International Classification of Functioning, Disability and Health and the International Classification of Functioning, Disability and Health-Children and Youth Version in chronic health conditions: the example of young people with hemophilia. Am J Phys Med Rehabil (2012) 0.89

Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory ™ generic core scales, cancer module, and multidimensional fatigue scale in long-term adult survivors of pediatric cancer. Pediatr Blood Cancer (2012) 0.88

Exercise prescription for patients with a Fontan circulation: current evidence and future directions. Neth Heart J (2007) 0.87

Health related quality of life in Dutch young adults: psychometric properties of the PedsQL generic core scales young adult version. Health Qual Life Outcomes (2014) 0.87

Survival data and predictors of functional outcome an average of 15 years after the Fontan procedure: the pediatric heart network Fontan cohort. Congenit Heart Dis (2014) 0.84

Distance between patients' subjective perceptions and objectively evaluated disease severity in chronic heart failure. Psychother Psychosom (2003) 0.84

Patient-reported outcomes in adult survivors with single-ventricle physiology. Cardiology (2011) 0.81

Quality of life of patients with congenital heart diseases. Cardiol Young (2011) 0.79

The relationship of patient medical and laboratory characteristics to changes in functional health status in children and adolescents after the Fontan procedure. Pediatr Cardiol (2013) 0.77

Articles by these authors

Randomized trial of pulsed corticosteroid therapy for primary treatment of Kawasaki disease. N Engl J Med (2007) 6.22

Comparison of shunt types in the Norwood procedure for single-ventricle lesions. N Engl J Med (2010) 5.43

Atenolol versus losartan in children and young adults with Marfan's syndrome. N Engl J Med (2014) 5.11

Enalapril in infants with single ventricle: results of a multicenter randomized trial. Circulation (2010) 3.13

Contemporary outcomes after the Fontan procedure: a Pediatric Heart Network multicenter study. J Am Coll Cardiol (2008) 2.91

Coronary artery involvement in children with Kawasaki disease: risk factors from analysis of serial normalized measurements. Circulation (2007) 2.76

A cross-sectional study of exercise performance during the first 2 decades of life after the Fontan operation. J Am Coll Cardiol (2008) 2.30

Rationale and design of a randomized clinical trial of beta-blocker therapy (atenolol) versus angiotensin II receptor blocker therapy (losartan) in individuals with Marfan syndrome. Am Heart J (2007) 2.14

Design and rationale of a randomized trial comparing the Blalock-Taussig and right ventricle-pulmonary artery shunts in the Norwood procedure. J Thorac Cardiovasc Surg (2008) 2.12

The Pediatric Heart Network: a primer for the conduct of multicenter studies in children with congenital and acquired heart disease. Pediatr Cardiol (2006) 1.86

The ventricular volume variability study of the Pediatric Heart Network: study design and impact of beat averaging and variable type on the reproducibility of echocardiographic measurements in children with chronic dilated cardiomyopathy. J Am Soc Echocardiogr (2012) 1.82

Interstage mortality after the Norwood procedure: Results of the multicenter Single Ventricle Reconstruction trial. J Thorac Cardiovasc Surg (2012) 1.79

Relationship of patient and medical characteristics to health status in children and adolescents after the Fontan procedure. Circulation (2006) 1.78

Design of a large cross-sectional study to facilitate future clinical trials in children with the Fontan palliation. Am Heart J (2006) 1.74

Early developmental outcome in children with hypoplastic left heart syndrome and related anomalies: the single ventricle reconstruction trial. Circulation (2012) 1.72

Arrhythmias in a contemporary fontan cohort: prevalence and clinical associations in a multicenter cross-sectional study. J Am Coll Cardiol (2010) 1.59

Impact of initial shunt type on cardiac size and function in children with single right ventricle anomalies before the Fontan procedure: the single ventricle reconstruction extension trial. J Am Coll Cardiol (2014) 1.54

Risk factors for hospital morbidity and mortality after the Norwood procedure: A report from the Pediatric Heart Network Single Ventricle Reconstruction trial. J Thorac Cardiovasc Surg (2012) 1.46

Comparison of echocardiographic and cardiac magnetic resonance imaging measurements of functional single ventricular volumes, mass, and ejection fraction (from the Pediatric Heart Network Fontan Cross-Sectional Study). Am J Cardiol (2009) 1.45

Technical performance score is associated with outcomes after the Norwood procedure. J Thorac Cardiovasc Surg (2014) 1.43

Factors affecting Fontan length of stay: Results from the Single Ventricle Reconstruction trial. J Thorac Cardiovasc Surg (2015) 1.43

Associated symptoms in the ten days before diagnosis of Kawasaki disease. J Pediatr (2008) 1.32

Delayed diagnosis of Kawasaki disease: what are the risk factors? Pediatrics (2007) 1.31

Rationale and design of a trial of angiotensin-converting enzyme inhibition in infants with single ventricle. Am Heart J (2009) 1.25

Transplantation-free survival and interventions at 3 years in the single ventricle reconstruction trial. Circulation (2014) 1.22

Evaluation of Kawasaki disease risk-scoring systems for intravenous immunoglobulin resistance. J Pediatr (2010) 1.22

Intermediate-term mortality and cardiac transplantation in infants with single-ventricle lesions: risk factors and their interaction with shunt type. J Thorac Cardiovasc Surg (2012) 1.21

Association of impaired linear growth and worse neurodevelopmental outcome in infants with single ventricle physiology: a report from the pediatric heart network infant single ventricle trial. J Pediatr (2012) 1.17

Variability of M-mode versus two-dimensional echocardiography measurements in children with dilated cardiomyopathy. Pediatr Cardiol (2013) 1.17

Variation in perioperative care across centers for infants undergoing the Norwood procedure. J Thorac Cardiovasc Surg (2012) 1.16

Cause, timing, and location of death in the Single Ventricle Reconstruction trial. J Thorac Cardiovasc Surg (2012) 1.14

Characteristics of children and young adults with Marfan syndrome and aortic root dilation in a randomized trial comparing atenolol and losartan therapy. Am Heart J (2013) 1.14

Late status of Fontan patients with persistent surgical fenestration. J Am Coll Cardiol (2011) 1.12

Echocardiographic methods, quality review, and measurement accuracy in a randomized multicenter clinical trial of Marfan syndrome. J Am Soc Echocardiogr (2013) 1.09

Factors affecting growth in infants with single ventricle physiology: a report from the Pediatric Heart Network Infant Single Ventricle Trial. J Pediatr (2011) 1.09

Renin-angiotensin-aldosterone genotype influences ventricular remodeling in infants with single ventricle. Circulation (2011) 1.06

Does initial shunt type for the Norwood procedure affect echocardiographic measures of cardiac size and function during infancy?: the Single Vventricle Reconstruction trial. Circulation (2012) 1.06

Parent- versus child-reported functional health status after the Fontan procedure. Pediatrics (2009) 1.05

Noncoronary cardiac abnormalities are associated with coronary artery dilation and with laboratory inflammatory markers in acute Kawasaki disease. J Am Coll Cardiol (2011) 1.05

Prenatal diagnosis and risk factors for preoperative death in neonates with single right ventricle and systemic outflow obstruction: screening data from the Pediatric Heart Network Single Ventricle Reconstruction Trial(∗). J Thorac Cardiovasc Surg (2010) 1.04

Factors associated with serum brain natriuretic peptide levels after the Fontan procedure. Congenit Heart Dis (2011) 1.01

Functional status, heart rate, and rhythm abnormalities in 521 Fontan patients 6 to 18 years of age. J Thorac Cardiovasc Surg (2008) 1.00

Laboratory measures of exercise capacity and ventricular characteristics and function are weakly associated with functional health status after Fontan procedure. Circulation (2009) 0.99

Surgical management of complete atrioventricular septal defect: associations with surgical technique, age, and trisomy 21. J Thorac Cardiovasc Surg (2010) 0.96

Predictors of coronary artery visualization in Kawasaki disease. J Am Soc Echocardiogr (2011) 0.88

Comparison of Fontan survivors with and without pacemakers: a report from the Pediatric Heart Network Fontan Cross-Sectional Study. Congenit Heart Dis (2012) 0.88

Relation of size of secondary ventricles to exercise performance in children after fontan operation. Am J Cardiol (2010) 0.87

The reproducibility and absolute values of echocardiographic measurements of left ventricular size and function in children are algorithm dependent. J Am Soc Echocardiogr (2015) 0.87

Partial and transitional atrioventricular septal defect outcomes. Ann Thorac Surg (2010) 0.86

Birth weight and prematurity in infants with single ventricle physiology: pediatric heart network infant single ventricle trial screened population. Congenit Heart Dis (2010) 0.86

Functional state following the Fontan procedure. Cardiol Young (2009) 0.85

Factors associated with neurodevelopment for children with single ventricle lesions. J Pediatr (2014) 0.85

Non-geometric echocardiographic indices of ventricular function in patients with a Fontan circulation. J Am Soc Echocardiogr (2011) 0.85

Survival data and predictors of functional outcome an average of 15 years after the Fontan procedure: the pediatric heart network Fontan cohort. Congenit Heart Dis (2014) 0.84

Predictors of disease progression in pediatric dilated cardiomyopathy. Circ Heart Fail (2013) 0.84

Impact of pre-stage II hemodynamics and pulmonary artery anatomy on 12-month outcomes in the Pediatric Heart Network Single Ventricle Reconstruction trial. J Thorac Cardiovasc Surg (2013) 0.84

Longitudinal assessment of growth in hypoplastic left heart syndrome: results from the single ventricle reconstruction trial. J Am Heart Assoc (2014) 0.83

Risk factors for prolonged length of stay after the stage 2 procedure in the single-ventricle reconstruction trial. J Thorac Cardiovasc Surg (2013) 0.82

Surgical interventions for atrioventricular septal defect subtypes: the pediatric heart network experience. Ann Thorac Surg (2011) 0.82

Growth Asymmetry, Head Circumference, and Neurodevelopmental Outcomes in Infants with Single Ventricles. J Pediatr (2015) 0.82

Factors impacting echocardiographic imaging after the Fontan procedure: a report from the pediatric heart network fontan cross-sectional study. Echocardiography (2013) 0.80

Multicenter study comparing shunt type in the norwood procedure for single-ventricle lesions: three-dimensional echocardiographic analysis. Circ Cardiovasc Imaging (2013) 0.80

Doppler flow patterns in the right ventricle-to-pulmonary artery shunt and neo-aorta in infants with single right ventricle anomalies: impact on outcome after initial staged palliations. J Am Soc Echocardiogr (2013) 0.79

Rationale and methodology of a collaborative learning project in congenital cardiac care. Am Heart J (2016) 0.79

Superior cavopulmonary anastomosis timing and outcomes in infants with single ventricle. J Thorac Cardiovasc Surg (2012) 0.79

Utilizing a Collaborative Learning Model to Promote Early Extubation Following Infant Heart Surgery. Pediatr Crit Care Med (2016) 0.78

Associations Between Day of Admission and Day of Surgery on Outcome and Resource Utilization in Infants With Hypoplastic Left Heart Syndrome Who Underwent Stage I Palliation (from the Single Ventricle Reconstruction Trial). Am J Cardiol (2015) 0.78

Functional health status in children and adolescents after Fontan: comparison of generic and disease-specific assessments. Cardiol Young (2013) 0.77

Variation in feeding practices following the Norwood procedure. J Pediatr (2013) 0.77

The relationship of patient medical and laboratory characteristics to changes in functional health status in children and adolescents after the Fontan procedure. Pediatr Cardiol (2013) 0.77

Cardiac performance and quality of life in patients who have undergone the Fontan procedure with and without prior superior cavopulmonary connection. Cardiol Young (2012) 0.77

Completeness and Accuracy of Local Clinical Registry Data for Children Undergoing Heart Surgery. Ann Thorac Surg (2016) 0.75

Development and impact of arrhythmias after the Norwood procedure: A report from the Pediatric Heart Network. J Thorac Cardiovasc Surg (2016) 0.75

Systolic-diastolic functional coupling in healthy children and in those with dilated cardiomyopathy. J Appl Physiol (1985) (2016) 0.75

Assessment of Growth 6 Years after the Norwood Procedure. J Pediatr (2016) 0.75

Assessment of Diastolic Function in Single-Ventricle Patients After the Fontan Procedure. J Am Soc Echocardiogr (2016) 0.75

Passive range of motion exercise to enhance growth in infants following the Norwood procedure: a safety and feasibility trial. Cardiol Young (2017) 0.75

Comparison of echocardiographic measurements to invasive measurements of diastolic function in infants with single ventricle physiology: a report from the Pediatric Heart Network Infant Single Ventricle Trial. Cardiol Young (2019) 0.75

The Effect of the Superior Cavopulmonary Anastomosis on Ventricular Remodeling in Infants with Single Ventricle. J Am Soc Echocardiogr (2017) 0.75

Longitudinal Outcomes of Patients With Single Ventricle After the Fontan Procedure. J Am Coll Cardiol (2017) 0.75

Results of a phase I/II multi-center investigation of udenafil in adolescents after fontan palliation. Am Heart J (2017) 0.75

Recruitment, retention, and adherence in a clinical trial: The Pediatric Heart Network's Marfan Trial experience. Clin Trials (2020) 0.75

Translating clinical trials into clinical practice: a survey assessing the potential impact of the Pediatric Heart Network Infant Single Ventricle Trial. Cardiol Young (2017) 0.75