Published in J Adolesc Health on July 01, 2006
Psychological outcomes and health beliefs in adolescent and young adult survivors of childhood cancer and controls. J Clin Oncol (2010) 1.67
College health service capacity to support youth with chronic medical conditions. Pediatrics (2014) 1.39
Transition of care from paediatric to adult rheumatology. Arch Dis Child (2007) 1.21
Growing up with a chronic illness: social success, educational/vocational distress. J Adolesc Health (2011) 1.13
Preparing adolescents with chronic disease for transition to adult care: a technology program. Pediatrics (2014) 1.11
The course of life and quality of life of early and continuously treated Dutch patients with phenylketonuria. J Inherit Metab Dis (2006) 1.08
Determinants of quality of life in adults with type 1 and type 2 diabetes. Health Qual Life Outcomes (2011) 1.06
Evaluation of the Psychometric Properties of the Revised Inventory of the Dimensions of Emerging Adulthood (IDEA-R) in a Sample of Continuation High School Students. Eval Health Prof (2012) 1.04
Study protocol: longitudinal study of the transition of young people with complex health needs from child to adult health services. BMC Public Health (2013) 1.04
New understanding of adolescent brain development: relevance to transitional healthcare for young people with long term conditions. Arch Dis Child (2013) 1.01
Correlates of depressive and anxiety symptoms in young adults with spina bifida. J Pediatr Psychol (2009) 0.98
Young adult outcomes of children growing up with chronic illness: an analysis of the National Longitudinal Study of Adolescent Health. Arch Pediatr Adolesc Med (2011) 0.97
Self-management skills in adolescents with chronic rheumatic disease: A cross-sectional survey. Pediatr Rheumatol Online J (2011) 0.93
Health-related quality of life of children and adolescents with CKD stages 4-5 and their caregivers. Pediatr Nephrol (2014) 0.90
Health related quality of life and parental perceptions of child vulnerability among parents of a child with juvenile idiopathic arthritis: results from a web-based survey. Pediatr Rheumatol Online J (2014) 0.89
Feasibility, reliability, and validity of the Pediatric Quality of Life Inventory ™ generic core scales, cancer module, and multidimensional fatigue scale in long-term adult survivors of pediatric cancer. Pediatr Blood Cancer (2012) 0.88
Transition to adulthood and antiretroviral adherence among HIV-positive young Black men who have sex with men. Am J Public Health (2014) 0.88
Health-Related Quality of Life of Young Adult Survivors of Childhood Cancer: A Review of Qualitative Studies. J Adolesc Young Adult Oncol (2011) 0.87
Health related quality of life in Dutch young adults: psychometric properties of the PedsQL generic core scales young adult version. Health Qual Life Outcomes (2014) 0.87
Self-reported quality of life in children and young people with chronic kidney disease. Pediatr Nephrol (2011) 0.87
Development and validation of the health competence beliefs inventory in young adults with and without a history of childhood cancer. Ann Behav Med (2011) 0.87
Depression and its associated factors in pediatric chronic kidney disease. Pediatr Nephrol (2013) 0.83
The impact of delayed development on the quality of life of adults with end-stage renal disease since childhood. Pediatr Nephrol (2006) 0.82
Health-related quality of life, anxiety and depression in young adults with disability benefits due to childhood-onset somatic conditions. Child Adolesc Psychiatry Ment Health (2013) 0.82
Transition from childhood to adulthood in coeliac disease: the Prague consensus report. Gut (2016) 0.81
Evaluation of quality of life by young adult survivors of severe chronic kidney disease in infancy. Pediatr Nephrol (2014) 0.80
Heightened graft failure risk during emerging adulthood and transition to adult care. Pediatr Nephrol (2014) 0.80
Head-to-head comparisons of quality of life instruments for young adult survivors of childhood cancer. Support Care Cancer (2011) 0.79
Patient-Reported Outcomes Measurement Information System in Children with Crohn's Disease. J Pediatr (2016) 0.78
Effective peer-to-peer support for young people with end-stage renal disease: a mixed methods evaluation of Camp COOL. BMC Nephrol (2013) 0.78
Provider awareness alone does not improve transition readiness skills in adolescent patients with inflammatory bowel disease. J Pediatr Gastroenterol Nutr (2014) 0.77
Improving outcomes for youth with chronic conditions: it's time for increased collaboration. J Adolesc Health (2006) 0.77
Views of Young People With Chronic Conditions on Transition From Pediatric to Adult Health Services. J Adolesc Health (2016) 0.77
Psychosocial well-being in young adults with chronic illness since childhood: the role of illness cognitions. Child Adolesc Psychiatry Ment Health (2014) 0.77
Characteristics of young people with long term conditions close to transfer to adult health services. BMC Health Serv Res (2015) 0.76
Lifetime prevalence of sexual intercourse and contraception use at last sex among adolescents and young adults with congenital heart disease. J Adolesc Health (2015) 0.75
Psychosocial Characteristics of Children with Central Disorders of Hypersomnolence Versus Matched Healthy Children. J Clin Sleep Med (2015) 0.75
Profiles of Health Competence Beliefs Among Young Adult Survivors of Childhood Cancer. J Adolesc Young Adult Oncol (2011) 0.75
Known-groups validity of the Patient-Reported Outcomes Measurement Information System (PROMIS(®)) in adolescents and young adults with special healthcare needs. Qual Life Res (2016) 0.75
Transition from childhood to adolescence: Quality of life changes 6 years later in patients born with anorectal malformations. Pediatr Surg Int (2015) 0.75
Measurement of quality of life and attitudes towards illness in children and young people with chronic kidney disease. Qual Life Res (2017) 0.75
Definitions and measurement of chronic health conditions in childhood: a systematic review. JAMA (2007) 2.86
Rituximab treatment for severe steroid- or cyclosporine-dependent nephrotic syndrome: a multicentric series of 22 cases. Pediatr Nephrol (2008) 2.64
Neurocognitive deficits in children with sickle cell disease: a comprehensive profile. Pediatr Blood Cancer (2010) 1.53
Social consequences in adult life of end-stage renal disease in childhood. J Pediatr (2005) 1.50
Primary hyperoxaluria Type 1: indications for screening and guidance for diagnosis and treatment. Nephrol Dial Transplant (2012) 1.48
Long-term renal function under plasma exchange in atypical hemolytic uremic syndrome. Pediatr Nephrol (2011) 1.43
International comparison of contributions to psychosocial research on survivors of childhood cancer: past and future considerations. J Pediatr Psychol (2004) 1.41
Maintenance of kidney function following treatment with eculizumab and discontinuation of plasma exchange after a third kidney transplant for atypical hemolytic uremic syndrome associated with a CFH mutation. Am J Kidney Dis (2009) 1.39
Non-VACTERL-type anomalies are frequent in patients with esophageal atresia/tracheo-esophageal fistula and full or partial VACTERL association. Birth Defects Res A Clin Mol Teratol (2008) 1.36
Hidden consequences of success in pediatrics: parental health-related quality of life--results from the Care Project. Pediatrics (2008) 1.31
White matter fractional anisotropy correlates with speed of processing and motor speed in young childhood cancer survivors. Int J Radiat Oncol Biol Phys (2008) 1.30
Pediatric health-related quality of life questionnaires in clinical trials. Curr Opin Allergy Clin Immunol (2006) 1.27
Living with classical galactosemia: health-related quality of life consequences. Pediatrics (2004) 1.26
Prophylactic plasma exchange in CD46-associated atypical haemolytic uremic syndrome. Pediatr Nephrol (2009) 1.16
Emotional functioning of parents of children with cancer: the first five years of continuous remission after the end of treatment. Psychooncology (2008) 1.12
Health related quality of life of Dutch children: psychometric properties of the PedsQL in the Netherlands. BMC Pediatr (2009) 1.05
Innovations in e-health. Qual Life Res (2013) 1.03
A predictive model of Health Related Quality of life of parents of chronically ill children: the importance of care-dependency of their child and their support system. Health Qual Life Outcomes (2009) 1.03
Health-related quality of life in young adults with symptoms of constipation continuing from childhood into adulthood. Health Qual Life Outcomes (2009) 1.02
Monitoring health-related quality of life in paediatric practice: development of an innovative web-based application. BMC Pediatr (2011) 1.00
Neurocognitive deficits in children with sickle cell disease are associated with the severity of anemia. Pediatr Blood Cancer (2010) 1.00
Expectant management versus surgical evacuation in first trimester miscarriage: health-related quality of life in randomized and non-randomized patients. Hum Reprod (2002) 0.98
Effect of dexamethasone on quality of life in children with acute lymphoblastic leukaemia: a prospective observational study. Health Qual Life Outcomes (2008) 0.98
Longitudinal assessment of health-related quality of life in preschool children with non-CNS cancer after the end of successful treatment. Pediatr Blood Cancer (2008) 0.97
Neurocognitive consequences of a paediatric brain tumour and its treatment: a meta-analysis. Dev Med Child Neurol (2012) 0.96
Defining chronic diseases and health conditions in childhood (0-18 years of age): national consensus in the Netherlands. Eur J Pediatr (2008) 0.96
Behavioral therapy for childhood constipation: a randomized, controlled trial. Pediatrics (2008) 0.96
Chronic childhood constipation: a review of the literature and the introduction of a protocolized behavioral intervention program. Patient Educ Couns (2007) 0.93
Neonatal screening for congenital hypothyroidism in the Netherlands: cognitive and motor outcome at 10 years of age. J Clin Endocrinol Metab (2006) 0.92
Quality of life in children three and nine months after discharge from a paediatric intensive care unit: a prospective cohort study. Health Qual Life Outcomes (2008) 0.92
Positive effects of a psycho-educational group intervention for children with a chronic disease: first results. Patient Educ Couns (2006) 0.92
Outcome of paediatric intensive care survivors. Eur J Pediatr (2007) 0.91
Health-related quality of life, cognitive functioning and behaviour problems in children with Langerhans cell histiocytosis. Pediatr Blood Cancer (2009) 0.91
Follow-up after paediatric intensive care treatment: parental posttraumatic stress. Acta Paediatr (2008) 0.91
Course and predictors of posttraumatic stress disorder in parents after pediatric intensive care treatment of their child. J Pediatr Psychol (2010) 0.90
Behavioral and emotional problems in children with sickle cell disease and healthy siblings: Multiple informants, multiple measures. Pediatr Blood Cancer (2009) 0.89
Efficacy of psychosocial group intervention for children with chronic illness and their parents. Pediatrics (2013) 0.89
Health related quality of life in Dutch young adults: psychometric properties of the PedsQL generic core scales young adult version. Health Qual Life Outcomes (2014) 0.87
Predicting health-related quality of life of parents of children with inherited metabolic diseases. Acta Paediatr (2009) 0.87
An explorative study on quality of life and psychological and cognitive function in pediatric survivors of septic shock. Pediatr Crit Care Med (2009) 0.87
Posttraumatic stress disorder (PTSD) in children after paediatric intensive care treatment compared to children who survived a major fire disaster. Child Adolesc Psychiatry Ment Health (2008) 0.87
Parenting a child with phenylketonuria or galactosemia: implications for health-related quality of life. J Inherit Metab Dis (2011) 0.87
The course of life of patients with childhood atopic dermatitis. Pediatr Dermatol (2009) 0.86
Coping and family functioning predict longitudinal psychological adaptation of siblings of childhood cancer patients. J Pediatr Psychol (2004) 0.86
Psychosocial indicators of health-related quality of life in children with cancer 2 months after end of successful treatment. J Pediatr Hematol Oncol (2007) 0.86
Long-term psychological distress in parents of child survivors of severe meningococcal disease. Pediatr Rehabil (2005) 0.86
Sleep disorders in children after treatment for a CNS tumour. J Sleep Res (2011) 0.86
A multicentric study of disease-related stress, and perceived vulnerability, in parents of children with congenital cardiac disease. Cardiol Young (2009) 0.85
Six-minute walking test in children with ESRD: discrimination validity and construct validity. Pediatr Nephrol (2009) 0.85
Effectiveness of a web-based application to monitor health-related quality of life. Pediatrics (2013) 0.85
Children's experiences of dialysis: a systematic review of qualitative studies. Arch Dis Child (2012) 0.85
Quality of life in adult survivors of correction of esophageal atresia. Arch Surg (2005) 0.84
Health-related quality of life and impact of haemangiomas on children and their parents. J Plast Reconstr Aesthet Surg (2008) 0.84
Course of life of survivors of childhood cancer is related to quality of life in young adulthood. J Psychosoc Oncol (2007) 0.84
Quality of the parent-child interaction in young children with type 1 diabetes mellitus: study protocol. BMC Pediatr (2011) 0.84
Health-related quality of life in children and emotional reactions of parents following completion of cancer treatment. Pediatr Blood Cancer (2006) 0.84
Development and validation of the distress thermometer for parents of a chronically ill child. J Pediatr (2013) 0.84
Evaluation of a psycho-educational group intervention for children treated for cancer: a descriptive pilot study. Psychooncology (2009) 0.82
Psychometric qualities of the Dutch version of the Pediatric Inventory for Parents (PIP): a multi-center study. Psychooncology (2010) 0.82
Exercise training in pediatric patients with end-stage renal disease. Pediatr Nephrol (2008) 0.82
Factors influencing childhood cancer patients to participate in a combined physical and psychosocial intervention program: Quality of Life in Motion. Psychooncology (2014) 0.82
Health related quality of life in parents of six to eight year old children with Down syndrome. Res Dev Disabil (2013) 0.82
Prevalence and associated clinical characteristics of behavior problems in constipated children. Pediatrics (2010) 0.81
Evaluation of quality of life in PKU before and after introducing tetrahydrobiopterin (BH4); a prospective multi-center cohort study. Mol Genet Metab (2013) 0.81
Quality of life questionnaires for children with cancer and childhood cancer survivors: a review of the development of available measures. Support Care Cancer (2009) 0.81
Child and parental adaptation to pediatric stem cell transplantation. Support Care Cancer (2008) 0.81
Psychosocial developmental trajectory of adolescents with inflammatory bowel disease. J Pediatr Gastroenterol Nutr (2013) 0.81
Childhood brain tumor survivors at risk for impaired health-related quality of life. J Pediatr Hematol Oncol (2013) 0.80
Spontaneous outgrowth of EBV-transformed B-cells reflects EBV-specific immunity in vivo; a useful tool in the follow-up of EBV-driven immunoproliferative disorders in allograft recipients. Transpl Int (2003) 0.80
Volume of white matter hyperintensities is an independent predictor of intelligence quotient and processing speed in children with sickle cell disease. Br J Haematol (2014) 0.80
Neurofeedback to improve neurocognitive functioning of children treated for a brain tumor: design of a randomized controlled double-blind trial. BMC Cancer (2012) 0.79
Primary hyperoxaluria type 1: practical and ethical issues. Pediatr Nephrol (2013) 0.79
Explorative study on the aftercare of pediatric brain tumor survivors: a parents' perspective. Support Care Cancer (2010) 0.79
Evaluation of cognitive and motor development in toddlers with congenital hypothyroidism diagnosed by neonatal screening. J Dev Behav Pediatr (2012) 0.78
Effects of early thyroxine treatment on development and growth at age 10.7 years: follow-up of a randomized placebo-controlled trial in children with Down's syndrome. J Clin Endocrinol Metab (2014) 0.78
Health-related quality of life and psychosocial developmental trajectory in young female beneficiaries with JIA. Rheumatology (Oxford) (2011) 0.78
Feasibility of an online cognitive behavioral-based group intervention for adolescents treated for cancer: a pilot study. J Psychosoc Oncol (2014) 0.78
Health related quality of life in children with constipation-associated fecal incontinence. J Pediatr (2009) 0.78
Health- related quality of life and self-worth in 10-year old children with congenital hypothyroidism diagnosed by neonatal screening. Child Adolesc Psychiatry Ment Health (2012) 0.78
Alexithymia in long-term survivors of childhood cancer. Pediatr Rehabil (2003) 0.77
Double disadvantage: a case control study on health-related quality of life in children with sickle cell disease. Health Qual Life Outcomes (2010) 0.77
Prevention of large-vessel stenoses in atypical hemolytic uremic syndrome associated with complement dysregulation. Pediatr Nephrol (2010) 0.77
A cognitive behavioral based group intervention for children with a chronic illness and their parents: a multicentre randomized controlled trial. BMC Pediatr (2011) 0.77
Measuring perceived benefit and disease-related burden in young cancer survivors: validation of the Benefit and Burden Scale for Children (BBSC) in The Netherlands. Support Care Cancer (2011) 0.77
A pilot study on peritraumatic dissociation and coping styles as risk factors for posttraumatic stress, anxiety and depression in parents after their child's unexpected admission to a Pediatric Intensive Care Unit. Child Adolesc Psychiatry Ment Health (2009) 0.77
Quality of life and behavioral functioning in Dutch children with a history of Kawasaki disease. J Pediatr (2012) 0.77
Health related quality of life and perceptions of child vulnerability among parents of children with a history of Kawasaki disease. Acta Paediatr (2014) 0.77
Children of non-Western origin with end-stage renal disease in the Netherlands, Belgium and a part of Germany have impaired health-related quality of life compared with Western children. Nephrol Dial Transplant (2013) 0.76
Quality of life in adults with end-stage renal disease since childhood is only partially impaired. Nephrol Dial Transplant (2003) 0.76
Impact of growing up with Fabry disease on achievement of psychosocial milestones and quality of life. Mol Genet Metab (2011) 0.75
Applicability and evaluation of a psychosocial intervention program for childhood cancer patients. Support Care Cancer (2015) 0.75
Psychometric properties and Dutch norm data of the PedsQL Multidimensional Fatigue Scale for Young Adults. Qual Life Res (2014) 0.75
At what age is hydrocephalus detected, and what is the role of head circumference measurements? Eur J Public Health (2013) 0.75
Parental Distress and Quality of Life in Pediatric Inflammatory Bowel Disease: Implications for the Outpatient Clinic. J Pediatr Gastroenterol Nutr (2017) 0.75
[Guideline 'Incontinence urine and feces' of the Dutch Preventive Youth Health Care]. Ned Tijdschr Geneeskd (2012) 0.75
Quality of life and behavioral functioning in Dutch pediatric patients with hereditary spherocytosis. Eur J Pediatr (2014) 0.75