Published in Am J Public Health on October 03, 2006
Genomic research and wide data sharing: views of prospective participants. Genet Med (2010) 3.45
Community consultation and communication for a population-based DNA biobank: the Marshfield clinic personalized medicine research project. Am J Med Genet A (2008) 2.74
DNA data sharing: research participants' perspectives. Genet Med (2008) 2.63
The role of race and trust in tissue/blood donation for genetic research. Genet Med (2010) 1.95
Participation in genetic testing research varies by social group. Public Health Genomics (2010) 1.79
Informed Consent in Genome-Scale Research: What Do Prospective Participants Think? AJOB Prim Res (2012) 1.50
Genetic research in the blood bank: acceptability to Northern California donors. Transfusion (2010) 1.36
Diverse perceptions of the informed consent process: implications for the recruitment and participation of diverse communities in the National Children's Study. Am J Community Psychol (2012) 1.28
Engaging African-Americans about biobanks and the return of research results. J Community Genet (2012) 1.12
Growing up in the genomic era: implications of whole-genome sequencing for children, families, and pediatric practice. Annu Rev Genomics Hum Genet (2013) 1.11
Racial and ethnic differences in willingness to participate in psychiatric genetic research. Psychiatr Genet (2009) 1.07
Biobank Recruitment: Motivations for Nonparticipation. Biopreserv Biobank (2009) 1.07
An exploration of attitudes among black Americans towards psychiatric genetic research. Psychiatry (2009) 1.05
Beliefs and attitudes towards participating in genetic research - a population based cross-sectional study. BMC Public Health (2013) 1.01
Asking the right questions: views on genetic variation research among black and white research participants. J Gen Intern Med (2008) 0.97
Understanding participation by African Americans in cancer genetics research. J Natl Med Assoc (2012) 0.92
Factors affecting maternal participation in the genetic component of the National Birth Defects Prevention Study-United States, 1997-2007. Genet Med (2013) 0.86
African Americans' responses to genetic explanations of lung cancer disparities and their willingness to participate in clinical genetics research. Genet Med (2010) 0.84
Genetic research participation in a young adult community sample. J Community Genet (2014) 0.83
Effects of racial and ethnic group and health literacy on responses to genomic risk information in a medically underserved population. Health Psychol (2015) 0.82
Re-contacting participants for inclusion in the database of Genotypes and Phenotypes (dbGaP): Findings from three case-control studies of lung cancer. Genome Med (2014) 0.81
Using community-based participatory research principles to develop more understandable recruitment and informed consent documents in genomic research. PLoS One (2015) 0.80
Consent to specimen storage and continuing studies by race and ethnicity: a large dataset analysis using the 2011-2012 National Health and Nutrition Examination Survey. ScientificWorldJournal (2014) 0.80
Surrogate consent for genetic testing, the reconsent process, and consent for long-term outcomes in acute respiratory distress syndrome trials. Am J Respir Crit Care Med (2013) 0.77
Effect of ethnicity, gender and drug use history on achieving high rates of affirmative informed consent for genetics research: impact of sharing with a national repository. J Med Ethics (2011) 0.77
Leaves imitate trees: Minnesota Hmong concepts of heredity and applications to genomics research. J Community Genet (2016) 0.76
Patient characteristics and participation in a genetic study: a type 2 diabetes cohort. J Investig Med (2014) 0.75
Predictors of consent to pharmacogenomics testing in the IDEAL study. Pharmacogenet Genomics (2013) 0.75
Barriers and facilitators to recruitment to a culturally-based dietary intervention among urban Hispanic breast cancer survivors. J Racial Ethn Health Disparities (2014) 0.75
Cost and yield considerations when expanding recruitment for genetic studies: the primary open-angle African American glaucoma genetics study. BMC Med Res Methodol (2017) 0.75
Racial differences in factors that influence the willingness to participate in medical research studies. Ann Epidemiol (2002) 5.81
Categorization of humans in biomedical research: genes, race and disease. Genome Biol (2002) 4.84
Molecular basis of ethnic differences in drug disposition and response. Annu Rev Pharmacol Toxicol (2001) 2.86
Consent for genetic research in a general population: the NHANES experience. Genet Med (2003) 2.77
Public attitudes regarding the donation and storage of blood specimens for genetic research. Community Genet (2001) 2.66
Deconstructing the relationship between genetics and race. Nat Rev Genet (2004) 2.40
Warranted concerns, warranted outlooks: a focus group study of public understandings of genetic research. Soc Sci Med (2005) 2.39
Why genes don't count (for racial differences in health). Am J Public Health (2000) 1.95
Barriers and strategies for sustained participation of African-American men in cohort studies. Ethn Dis (2003) 1.93
Consent for genetic research in a general population: an update on the National Health and Nutrition Examination Survey experience. Genet Med (2006) 1.87
Consent to the use of stored DNA for genetics research: a survey of attitudes in the Jewish population. Am J Med Genet (2001) 1.87
Recruitment experience in the first phase of the African American Hereditary Prostate Cancer (AAHPC) study. Ann Epidemiol (2000) 1.79
Personal characteristics of older primary care patients who provide a buccal swab for apolipoprotein E testing and banking of genetic material: the spectrum study. Community Genet (2004) 1.75
Understanding the challenges in recruiting blacks to a longitudinal cohort study: the Adventist health study. Ethn Dis (2004) 1.72
The use of race variables in genetic studies of complex traits and the goal of reducing health disparities: a transdisciplinary perspective. Am Psychol (2005) 1.71
Feasibility of collecting buccal cell DNA by mail in a cohort study. Cancer Epidemiol Biomarkers Prev (2001) 1.67
Racial differences in enrolment in a cancer genetics registry. Cancer Epidemiol Biomarkers Prev (2004) 1.62
Quantitative analysis of ethical issues in phase I trials: a survey interview of 144 advanced cancer patients. IRB (2001) 1.62
Will tomorrow's medicines work for everyone? Nat Genet (2004) 1.61
Attitudes of urban American Indians and Alaska Natives regarding participation in research. J Gen Intern Med (2006) 1.60
Perceptions of genetics research as harmful to society: differences among samples of African-Americans and European-Americans. Genet Test (2002) 1.50
Comparison of methods for collection of DNA samples by mail in the Black Women's Health Study. Ann Epidemiol (2004) 1.50
Race-based therapeutics. N Engl J Med (2004) 1.41
Through the community looking glass: reevaluating the ethical and policy implications of research on adolescent risk and sociopathology. Ethics Behav (2000) 1.36
"What are they going to do with the information?" Latino/Latina and African American perspectives on the Human Genome Project. Health Educ Behav (2003) 1.33
In the eye of the storm: race and genomics in research and practice. Am Psychol (2005) 1.29
Informed lay preferences for delivery of racially varied pharmacogenomics. Genet Med (2003) 1.28
Views of female breast cancer patients who donated biologic samples regarding storage and use of samples for genetic research. Clin Genet (2006) 1.27
Exploration of the impact of messages about genes and race on lay attitudes. Clin Genet (2004) 1.24
Beyond race: towards a whole-genome perspective on human populations and genetic variation. Nat Rev Genet (2004) 1.22
Recruitment of families for genetic studies of epilepsy. Epilepsia (2005) 1.08
Racial and ethnic disparity in participation in DNA collection at the Atlanta site of the National Birth Defects Prevention Study. Am J Epidemiol (2006) 1.05
Recruiting adolescents into genetic studies of smoking behavior. Cancer Epidemiol Biomarkers Prev (2002) 0.99
Community involvement in developing policies for genetic testing: assessing the interests and experiences of individuals affected by genetic conditions. Am J Public Health (2005) 0.97
Informed consent for genetic research. Arch Pediatr Adolesc Med (2004) 0.96
HIV/AIDS risk among brothel-based female sex workers in China: assessing the terms, content, and knowledge of sex work. Sex Transm Dis (2004) 4.88
Surplus men, sex work, and the spread of HIV in China. AIDS (2005) 3.64
Recommendations for returning genomic incidental findings? We need to talk! Genet Med (2013) 3.23
Factors associated with decisions to undergo surgery among patients with newly diagnosed early-stage lung cancer. JAMA (2010) 2.99
Research expectations among African American church leaders in the PRAISE! project: a randomized trial guided by community-based participatory research. Am J Public Health (2003) 2.48
Understanding the patient's perspective on rapid and routine HIV testing in an inner-city urgent care center. AIDS Educ Prev (2004) 2.45
"What's important to you?" The use of narratives to promote self-reflection and to understand the experiences of medical residents. Ann Intern Med (2002) 2.03
The role of race and trust in tissue/blood donation for genetic research. Genet Med (2010) 1.95
The invisible hand in clinical research: the study coordinator's critical role in human subjects protection. J Law Med Ethics (2002) 1.72
Great expectations: views of genetic research participants regarding current and future genetic studies. Genet Med (2008) 1.72
Knowledge of cultural competence among third-year medical students. J Natl Med Assoc (2005) 1.62
Psychosocial factors associated with routine health examination scheduling and receipt among African American men. J Natl Med Assoc (2010) 1.62
Community engagement in epidemiological research. Ambul Pediatr (2007) 1.53
Implementing the community health worker model within diabetes management: challenges and lessons learned from programs across the United States. Diabetes Educ (2008) 1.46
Special populations recruitment for the Women's Health Initiative: successes and limitations. Control Clin Trials (2004) 1.43
Consent forms and the therapeutic misconception: the example of gene transfer research. IRB (2005) 1.42
Factors related to female sex workers' willingness to utilize VCT service: a qualitative study in Jinan city, northern China. AIDS Behav (2008) 1.42
A comparison of respondent-driven and venue-based sampling of female sex workers in Liuzhou, China. Sex Transm Infect (2012) 1.38
Creating a segregated medical profession: African American physicians and organized medicine, 1846-1910. J Natl Med Assoc (2009) 1.38
Masculinity, medical mistrust, and preventive health services delays among community-dwelling African-American men. J Gen Intern Med (2010) 1.37
Cancer patient navigator tasks across the cancer care continuum. J Health Care Poor Underserved (2012) 1.26
Risk of cardiovascular events and death--does insurance matter? J Gen Intern Med (2007) 1.25
Biobanks in the United States: how to identify an undefined and rapidly evolving population. Biopreserv Biobank (2012) 1.22
Factors associated with utilization of a free HIV VCT clinic by female sex workers in Jinan City, Northern China. AIDS Behav (2011) 1.17
The many meanings of care in clinical research. Sociol Health Illn (2006) 1.17
Systematic differences in risk behaviors and syphilis prevalence across types of female sex workers: a preliminary study in Liuzhou, China. Sex Transm Dis (2012) 1.17
Investigator beliefs and reported success in recruiting minority participants. Contemp Clin Trials (2006) 1.16
Applying the community health worker model to diabetes management: using mixed methods to assess implementation and effectiveness. J Health Care Poor Underserved (2008) 1.15
Examining knowledge, attitudes, and beliefs about depression among Latino adults with type 2 diabetes. Diabetes Educ (2006) 1.14
Perception of racial barriers to health care in the rural South. J Health Care Poor Underserved (2006) 1.12
Communication, decision making, and cancer: what African Americans want physicians to know. J Palliat Med (2008) 1.07
Assessing benefits in clinical research: why diversity in benefit assessment can be risky. IRB (2003) 1.05
A conceptual model exploring the relationship between HIV stigma and implementing HIV clinical trials in rural communities of North Carolina. N C Med J (2010) 1.05
Public Comments on Proposed Regulatory Reforms That Would Impact Biospecimen Research: The Good, the Bad, and the Puzzling. IRB (2015) 1.04
Older women and HIV: how much do they know and where are they getting their information? J Am Geriatr Soc (2004) 1.03
A conceptual framework for Hispanic oral health care. J Public Health Dent (2008) 1.02
Research participants' perspectives on genotype-driven research recruitment. J Empir Res Hum Res Ethics (2011) 1.02
Differences in access to outpatient medical care for black and white adults in the rural South. Med Care (2006) 1.02
Factors associated with lack of interest in HIV testing in older at-risk women. J Womens Health (Larchmt) (2007) 1.01
Changing healthcare professionals' behaviors to eliminate disparities in healthcare: What do we know? How might we proceed? Am J Manag Care (2004) 1.01
Understanding social capital and HIV risk in rural African American communities. J Gen Intern Med (2011) 1.00
Distrust and poor self-reported health. Canaries in the coal mine? J Gen Intern Med (2006) 0.99
Effect of relationship factors on safer sex decisions in older inner-city women. J Womens Health (Larchmt) (2006) 0.99
"When you got nothing to do, you do somebody": A community's perceptions of neighborhood effects on adolescent sexual behaviors. Soc Sci Med (2010) 0.99
Family discussions about contraception and family planning: a qualitative exploration of black parent and adolescent perspectives. Perspect Sex Reprod Health (2010) 0.97
"If I could in a small way help": motivations for and beliefs about sample donation for genetic research. J Empir Res Hum Res Ethics (2011) 0.97
Asking the right questions: views on genetic variation research among black and white research participants. J Gen Intern Med (2008) 0.97
Using formative research to develop a context-specific approach to informed consent for clinical trials. J Empir Res Hum Res Ethics (2006) 0.94
Practical steps to community engaged research: from inputs to outcomes. J Law Med Ethics (2012) 0.92
Circles of care: development and initial evaluation of a peer support model for African Americans with advanced cancer. Health Educ Behav (2012) 0.92
Segregation, civil rights, and health disparities: the legacy of African American physicians and organized medicine, 1910-1968. J Natl Med Assoc (2009) 0.90
Building the case for cultural competence. Am J Med Sci (2003) 0.89
Empowering students with cultural competence knowledge: randomized controlled trial of a cultural competence curriculum for third-year medical students. J Natl Med Assoc (2009) 0.89
Self-care confidence mediates the relationship between perceived social support and self-care maintenance in adults with heart failure. J Card Fail (2013) 0.89
The role of public schools in HIV prevention: perspectives from African Americans in the rural South. AIDS Educ Prev (2012) 0.89
Developing a research agenda for cardiovascular disease prevention in high-risk rural communities. Am J Public Health (2013) 0.89
Do adults who believe in periodic health examinations receive more clinical preventive services? Prev Med (2007) 0.88
Improving participant understanding of informed consent in an HIV-prevention clinical trial: a comparison of methods. AIDS Behav (2012) 0.88
Developing a family-based diabetes program for Latino immigrants: do men and women face the same barriers? Fam Community Health (2011) 0.88
Silent endurance and profound loneliness: socioemotional suffering in African Americans living with HIV in the rural south. Qual Health Res (2010) 0.88
African American elders' perceptions of the influenza vaccine in Durham, North Carolina. N C Med J (2004) 0.87
Social isolation, vital exhaustion, and incident heart failure: findings from the Atherosclerosis Risk in Communities Study. Eur J Heart Fail (2012) 0.86
Towards a unified taxonomy of health indicators: academic health centers and communities working together to improve population health. Acad Med (2014) 0.85
Population-based sexual behavior surveys in China: Liuzhou compared with other prefectural cities. AIDS Behav (2014) 0.84
The organization of sex work in low- and high-priced venues with a focus on the experiences of ethnic minority women working in these venues. AIDS Behav (2014) 0.84
Results from a pilot promotora program to reduce depression and stress among immigrant Latinas. Health Promot Pract (2013) 0.84
Medical research ethics in China. Lancet (2008) 0.83
In their own voices: rural African-American youth speak out about community-based HIV prevention interventions. Prog Community Health Partnersh (2009) 0.83
Patient characteristics associated with favorable perceptions of patient-provider communication in early-stage lung cancer treatment. J Health Commun (2013) 0.83
In their own voices: rural African American youth speak out about community-based HIV prevention interventions. Prog Community Health Partnersh (2009) 0.83
Community-responsive research priorities: health research infrastructure. Prog Community Health Partnersh (2012) 0.82
Beyond incentives for involvement to compensation for consultants: increasing equity in CBPR approaches. Prog Community Health Partnersh (2013) 0.82
Parents' online portrayals of pediatric treatment and research options. J Empir Res Hum Res Ethics (2009) 0.81
Community perceptions of genomic research: implications for addressing health disparities. N C Med J (2013) 0.81
Implementation of the power to prevent diabetes prevention educational curriculum into rural African American communities: a feasibility study. Diabetes Educ (2013) 0.81
Assessing the readiness of black churches to engage in health disparities research. J Natl Med Assoc (2012) 0.81
Examining characteristics of congregation members willing to attend health promotion in African American churches. Health Promot Pract (2013) 0.81
How can psychological science inform research about genetic counseling for clinical genomic sequencing? J Genet Couns (2014) 0.81
Carrying the burden: perspectives of African American pastors on peer support for people with cancer. J Relig Health (2014) 0.81
Acceptability of a mobile health unit for rural HIV clinical trial enrollment and participation. AIDS Behav (2012) 0.80
Older women and HIV testing: examining the relationship between HIV testing history, age, and lifetime HIV risk behaviors. Sex Transm Dis (2008) 0.80
Evaluation of Amigas Latinas Motivando el Alma (ALMA): a pilot promotora intervention focused on stress and coping among immigrant Latinas. J Immigr Minor Health (2014) 0.80
Evaluating a community-partnered cancer clinical trials pilot intervention with African American communities. J Cancer Educ (2015) 0.79
Prior HIV testing among STD patients in Guangdong Province, China: opportunities for expanding detection of sexually transmitted HIV infection. Sex Transm Dis (2012) 0.79
Across the Miles: Process and Impacts of Collaboration with a Rural Community Advisory Board in HIV Research. Prog Community Health Partnersh (2015) 0.78
Acceptance of routine ELISA testing among black women STD patients: relationship to patient-provider racial concordance. Sex Transm Dis (2008) 0.78
Participating in research: attitudes within the African American church. J Relig Health (2014) 0.78
When older African American women are affected by violence in the home: a qualitative investigation of risk and protective factors. Violence Against Women (2009) 0.77
A qualitative study of rural black adolescents' perspectives on primary STD prevention strategies. Perspect Sex Reprod Health (2012) 0.77
Collaborative development of clinical trials education programs for African-American community-based organizations. J Cancer Educ (2015) 0.77
Bridging Research, Practice, and Policy: The "Evidence Academy" Conference Model. J Public Health Manag Pract (2016) 0.77
Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. Am J Hum Genet (2016) 0.77
Building Capacity in Community-Based Participatory Research Partnerships Through a Focus on Process and Multiculturalism. Prog Community Health Partnersh (2015) 0.76
Bioavailable insulin-like growth factor-I as mediator of racial disparity in obesity-relevant breast and colorectal cancer risk among postmenopausal women. Menopause (2016) 0.75
What can the elderly do to protect themselves from the flu in addition to getting a flu vaccination? Am J Public Health (2004) 0.75
Data Collection and Management in Community Engaged Research: Lessons Learned From Two Community-Based Participatory Research Partnerships. Prog Community Health Partnersh (2015) 0.75
Online Education and e-Consent for GeneScreen, a Preventive Genomic Screening Study. Public Health Genomics (2017) 0.75
Applying Cognitive Interviewing to Inform Measurement of Partnership Readiness: A New Approach to Strengthening Community-Academic Research. Prog Community Health Partnersh (2015) 0.75
Characteristics of women internists. MedGenMed (2002) 0.75
Erratum to: How can psychological science inform research about genetic counseling for clinical genomic sequencing? J Genet Couns (2015) 0.75