Published in J Law Med Ethics on January 01, 2008
Integrative Clinical Sequencing in the Management of Refractory or Relapsed Cancer in Youth. JAMA (2015) 2.02
The law of incidental findings in human subjects research: establishing researchers' duties. J Law Med Ethics (2008) 1.84
Patient decisions for disclosure of secondary findings among the first 200 individuals undergoing clinical diagnostic exome sequencing. Genet Med (2013) 1.63
Disclosure of incidental findings from next-generation sequencing in pediatric genomic research. Pediatrics (2013) 1.44
Incidental findings found in "healthy" volunteers during imaging performed for research: current legal and ethical implications. Br J Radiol (2010) 1.18
The disclosure of incidental genomic findings: an "ethically important moment" in pediatric research and practice. J Community Genet (2013) 1.10
Management of incidental findings during imaging research in "healthy" volunteers: current UK practice. Br J Radiol (2011) 1.07
Effect of child health status on parents' allowing children to participate in pediatric research. BMC Med Ethics (2013) 1.03
A closer look at the recommended criteria for disclosing genetic results: perspectives of medical genetic specialists, genomic researchers, and institutional review board chairs. J Genet Couns (2013) 0.88
Researchers' perceptions of the ethical implications of pharmacogenomics research with children. Public Health Genomics (2009) 0.85
Emerging issues in paediatric health research consent forms in Canada: working towards best practices. BMC Med Ethics (2013) 0.83
To disclose, or not to disclose? Context matters. Eur J Hum Genet (2014) 0.76
Parental Perception of Self-Empowerment in Pediatric Pharmacogenetic Testing: The Reactions of Parents to the Communication of Actual and Hypothetical CYP2D6 Test Results. Health Commun (2016) 0.75
Return of Results from Research Using Newborn Screening Dried Blood Samples. J Law Med Ethics (2015) 0.75
Sharing with More Caring: Coordinating and Improving the Ethical Governance of Data and Biomaterials Obtained from Children. PLoS One (2015) 0.75
Disclosing individual genetic results to research participants. Am J Bioeth (2006) 22.12
Managing incidental findings in human subjects research: analysis and recommendations. J Law Med Ethics (2008) 12.10
Disclosing individual results of clinical research: implications of respect for participants. JAMA (2005) 8.15
Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents. American Society of Human Genetics Board of Directors, American College of Medical Genetics Board of Directors. Am J Hum Genet (1995) 6.82
Reporting genetic results in research studies: summary and recommendations of an NHLBI working group. Am J Med Genet A (2006) 4.56
Informed consent for population-based research involving genetics. JAMA (2001) 4.10
Ethical consideration of incidental findings on adult brain MRI in research. Neurology (2004) 3.56
Genetic test evaluation: information needs of clinicians, policy makers, and the public. Am J Epidemiol (2002) 3.23
Genetic dilemmas and the child's right to an open future. Hastings Cent Rep (1997) 2.89
Ethical issues with genetic testing in pediatrics. Pediatrics (2001) 2.88
Disclosure of an HIV diagnosis to children: history, current research, and future directions. J Dev Behav Pediatr (2007) 2.87
Guidelines for adolescent health research. A position paper of the Society for Adolescent Medicine. J Adolesc Health (2003) 2.80
Implications of disclosing individual results of clinical research. JAMA (2006) 2.75
Revealing false paternity: some ethical considerations. Lancet (2001) 2.48
Returning genetic research results to individuals: points-to-consider. Bioethics (2006) 2.01
In loco parentis. Minimal risk as an ethical threshold for research upon children. Hastings Cent Rep (1993) 1.81
The ethics of paying for children's participation in research. J Pediatr (2002) 1.80
Direct-to-consumer sales of genetic services on the Internet. Genet Med (2003) 1.78
Confidential Health Care for Adolescents: position paper for the society for adolescent medicine. J Adolesc Health (2004) 1.66
Parental refusals of medical treatment: the harm principle as threshold for state intervention. Theor Med Bioeth (2004) 1.52
Disclosing misattributed paternity. Bioethics (1996) 1.37
Incidentalomas. A disease of modern technology. Endocrinol Metab Clin North Am (1997) 1.10
When do the federal regulations allow placebo-controlled trials in children? J Pediatr (2003) 1.01
Consent, competence, and confidentiality related to psychiatric conditions in adolescent medicine practice. Adolesc Med Clin (2006) 0.85
Disclosure of a diagnosis to children and adolescents when parents object. A clinical ethics analysis. Am J Dis Child (1993) 0.84
Managing familial risk in genetic testing. Genet Test (2004) 0.83
Medical confidentiality and disclosure of paternity. S D Law Rev (2002) 0.78