Published in J Empir Res Hum Res Ethics on July 01, 2015
Best Practices for Ethical Sharing of Individual-Level Health Research Data From Low- and Middle-Income Settings. J Empir Res Hum Res Ethics (2015) 1.06
Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam. J Empir Res Hum Res Ethics (2015) 1.02
Perceived Benefits, Harms, and Views About How to Share Data Responsibly: A Qualitative Study of Experiences With and Attitudes Toward Data Sharing Among Research Staff and Community Representatives in Thailand. J Empir Res Hum Res Ethics (2015) 1.00
Views of Ethical Best Practices in Sharing Individual-Level Data From Medical and Public Health Research: A Systematic Scoping Review. J Empir Res Hum Res Ethics (2015) 1.00
Sweat, Skepticism, and Uncharted Territory: A Qualitative Study of Opinions on Data Sharing Among Public Health Researchers and Research Participants in Mumbai, India. J Empir Res Hum Res Ethics (2015) 0.99
Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents. J Med Ethics (2015) 0.96
Sharing Public Health Research Data: Toward the Development of Ethical Data-Sharing Practice in Low- and Middle-Income Settings. J Empir Res Hum Res Ethics (2015) 0.90
Research Stakeholders' Views on Benefits and Challenges for Public Health Research Data Sharing in Kenya: The Importance of Trust and Social Relations. PLoS One (2015) 0.79
Addressing Global Data Sharing Challenges. J Empir Res Hum Res Ethics (2015) 0.76
Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries. BMC Med Ethics (2017) 0.75
Prepublication data sharing. Nature (2009) 12.24
Trust and the development of health care as a social institution. Soc Sci Med (2003) 4.96
Data sharing: Empty archives. Nature (2009) 4.48
Sharing health data: good intentions are not enough. Bull World Health Organ (2010) 3.60
Preparing for responsible sharing of clinical trial data. N Engl J Med (2013) 3.49
Effectiveness of Haemophilus influenzae type b Conjugate vaccine introduction into routine childhood immunization in Kenya. JAMA (2006) 3.31
Treatment-seeking behaviour, cost burdens and coping strategies among rural and urban households in Coastal Kenya: an equity analysis. Trop Med Int Health (2007) 3.07
Time for fair trade in research data. Lancet (2009) 2.29
Ethical data release in genome-wide association studies in developing countries. PLoS Med (2009) 2.23
Beginning community engagement at a busy biomedical research programme: experiences from the KEMRI CGMRC-Wellcome Trust Research Programme, Kilifi, Kenya. Soc Sci Med (2008) 2.13
Share and share alike: deciding how to distribute the scientific and social benefits of genomic data. Nat Rev Genet (2007) 1.83
Meeting the governance challenges of next-generation biorepository research. Sci Transl Med (2010) 1.75
Who shares? Who doesn't? Factors associated with openly archiving raw research data. PLoS One (2011) 1.75
Data sharing: not as simple as it seems. Environ Health (2011) 1.40
Engaging communities to strengthen research ethics in low-income settings: selection and perceptions of members of a network of representatives in coastal Kenya. Dev World Bioeth (2013) 1.40
Can Broad Consent be Informed Consent? Public Health Ethics (2011) 1.38
Sharing individual level data from observational studies and clinical trials: a perspective from NHLBI. Trials (2013) 1.33
Working with Concepts: The Role of Community in International Collaborative Biomedical Research. Public Health Ethics (2011) 1.28
Evolving friendships and shifting ethical dilemmas: fieldworkers' experiences in a short term community based study in Kenya. Dev World Bioeth (2013) 1.17
Improving health research governance and management in the Western Pacific: a WHO expert consultation. J Evid Based Med (2011) 1.15
Sharing health data: developing country perspectives. Bull World Health Organ (2010) 1.09
Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya. BMC Med Ethics (2013) 1.06
Sharing research data to improve public health: a perspective from the global south. Lancet (2011) 1.06
Systematic archiving and access to health research data: rationale, current status and way forward. Bull World Health Organ (2012) 1.04
Developing Ethical Practices for Public Health Research Data Sharing in South Africa: The Views and Experiences From a Diverse Sample of Research Stakeholders. J Empir Res Hum Res Ethics (2015) 1.03
Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam. J Empir Res Hum Res Ethics (2015) 1.02
Perceived Benefits, Harms, and Views About How to Share Data Responsibly: A Qualitative Study of Experiences With and Attitudes Toward Data Sharing Among Research Staff and Community Representatives in Thailand. J Empir Res Hum Res Ethics (2015) 1.00
Views of Ethical Best Practices in Sharing Individual-Level Data From Medical and Public Health Research: A Systematic Scoping Review. J Empir Res Hum Res Ethics (2015) 1.00
Sweat, Skepticism, and Uncharted Territory: A Qualitative Study of Opinions on Data Sharing Among Public Health Researchers and Research Participants in Mumbai, India. J Empir Res Hum Res Ethics (2015) 0.99
Sharing Public Health Research Data: Toward the Development of Ethical Data-Sharing Practice in Low- and Middle-Income Settings. J Empir Res Hum Res Ethics (2015) 0.90
What are fair study benefits in international health research? Consulting community members in Kenya. PLoS One (2014) 0.89
Public consultation in ethics: an experiment in representative ethics. J Bioeth Inq (2004) 0.88